@A MyParkinsonsTeam Member. Yes....this is a brave, new world but still not evolved enough to suit me. :-) Many of us are fearful of our future. But being fearful prevents us from enjoying life more. Did you hear about the Parkinson's patient who was fixed on not eating ice cream. "No thank you" she would say, if somebody mentioned going for ice cream. For years she secretly loved ice cream, but would not let herself indulge. Can you guess what happens next? She dies anyway...right? Why had she deprived herself of one of life's little pleasures? Ice cream is always a treat for me. Is it for you? My point? What are you afraid of and what do you have to lose? I'm all in...We won't live forever. My very best. Sterling

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A MyParki...

This maybe a response from outer space but take a look at Adult Onset Stills Disorder. Short explanation is an adult form of juvenile rheumatoid arthritis. It's rare and most Drs have no idea what it is. The Drs ran all kinds of tests and didn't have a clue what was going on. One of my clients worked for a tiny clinic isolated out in the middle of a sugar cane field. The Dr talked to me for a little while and reviewed my Hx and said. " you have Stills". After that I got hooked up with a good rheumatologist and now it's in remission. Like I said this may not help. Looking back I think my PD was going on back then.

I concluded that Lyme Disease can cause Parkinson's. I have had Lyme disease since 1983 and had a second infection. The first with a bulleye rash about a month after the bite. Even with treatment (because it went undiagnosed for 20 yrs the first time, I still have symptoms and occasionally need to treat it. My husband has had Lyme since he was 17 (undiagnosed until he went to a Lyme doc with me when he was in his 60s) and after extensive treatment, when he was near 70, we suspected something neurological. We got diagnosis' of ALS, old age, and I cannot remember what else and no specialist suspected PD until our Internist gave him an RX for CaboLevoDopa and he asked him to call him after 24 hrs to see if he felt better. He did and we went on to see a Movement Disorder Specialist. BUT He has absolutely no dyskensia (shalking) and never did. I have article after article from the Lyme Foundations to say that he has Parkinsonism and not really PD but he is being treated as Parkinsons with an antibiotic good for Lyme every now and then.
There is a correlation, folks and because the government will not recognize lyme and study it, we will not know the neurological differences!
I wonder about my future!

@A MyParkinsonsTeam Member. Hello to my new friend. Your question about the ice cream was meant to be a farce. It just meant that if you like ice cream, then have some. Don't deprive yourself of something that you would enjoy just because you think it has too many calories in it or that you might put on some weight if you eat it. I say enjoy what you can because nobody gets out of this life alive. Ice cream or no ice cream.

I just added you to my team… Which is team Sterling. Enjoy the holiday. My best wishes. Sterling

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A MyParki...

We should not give up what we really enjoy only unless it conflicts with our medications or over wellbeing. One life to live so enjoy it the fullest we are capable of