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Do You As Well As Someone In Your Immediate Biological Family Have PD? (Caregivers: Report For Person With PD For Whom You Care)

Do You As Well As Someone In Your Immediate Biological Family Have PD? (Caregivers: Report For Person With PD For Whom You Care)

I have been a member of this network for several months and have only found one other person with PD (PWP) who reported that they had an immediate family member who also had PD. Were you tested for genetic variants associated with PD on 23andme.com ? What did you find out? I ask because both my recently deceased Dad and I both have/had PD. I hope that my course is as slow as his was. We… read more

A MyParkinsonsTeam Member said:

My PD has been diagnosed as being "familial". My Mother and Father both had regular age onset PD, however I have "Young Onset" PD. I knew I had it at the age of 43, but didn't get formal diagnosis till I was 47.

posted about 4 years ago
A MyParkinsonsTeam Member said:

In some loss there is happiness. I married a military man at age 16 who treated me like he was my father and bossed me around. After 13 years I left and got divorced from him. Freedom opened up to me and my two sons. My second marriage was to a Deputy Sheriff (Uniform Again) for 16 years. After coming down with Parkinson he wanted to put me in a nursing Home. Blessed again that I got away and got divorced from him. Had he got me in a nursing home my family wouldn't have been able to get me out. A wise man told me "You and only You are responsible for how you perceive, react, control yourself, to any and all situations.
For my case it was up to me to fix what was wrong and in both cases God Blessed me to get out of bad marriages. I was so much happier and now at 60 I don't want to take the chance of someone having power over me. So depending on the situation divorce can be a great thing.

Over a short time I loss my: Mother Dec 23, 2008, Brother (age 48) Jan 20, 2009,
Cousin Jan 24, 2009. Uncle July 1, 2009 (my birthday)
April 20,2010 my son Dustin 31 years old,
Sister (age 55) May 28,2010, Fiancee Nov 24, 2010 , my baby sister (age 51) Jan 7, 2011

The loss of a loved one is so hard. For me my son's death tore me up the worst.

I had to to realize God loans all of us but for a time on Earth.

I had to Thank God for the time he gave me with each of my loved ones

It could have been a shorter time or none at all.

For me this gave me peace. I still cry and miss them but know how blessed I had that time!

Hugs

posted about 4 years ago
A MyParkinsonsTeam Member said:

This shouldn't frighten anyone. In pd, genetic variants increase or decrease risk but aren't known to be determinist, usually also requiring some kinds of environmental exposures as well.

posted about 4 years ago
A MyParkinsonsTeam Member said:

My Grannie , my mother,my brother myself and now my daughter had PD. I wasn't diagnosed until 78 years. My brother at the age of 70. My brother and I have rest leg. Famiail tremor and neuropathy in coming.. I have my DNA done with 23 and me. I am not sure if this is an answer or just. A reply

posted about 4 years ago
A MyParkinsonsTeam Member said:

Same as me, @A MyParkinsonsTeam Member. Yes, it could just be 'bad luck' for two people with a close genetic link to not have identifiable genetic cause for their PD. But the MJF study (which I am also participating in) has been looking at specific genetic biomarkers like LRKK2, I believe. There are still more complex combinations that might increase overall PD risk. I have a sample of my late father's DNA processed through 23andme . I have recently discovered that I have some variations in genes related to my methylation cycle that put me at increased risk of vulnerability to environmental toxins. I was just thinking about looking at my father's genomic analysis, to see whether he had the same pattern.

posted almost 4 years ago
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