How Many Of You Have Lewy Body Dementia Or Have A Spouse With It? Do You Have Any Advice For The Rest Of Us? | MyParkinsonsTeam

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How Many Of You Have Lewy Body Dementia Or Have A Spouse With It? Do You Have Any Advice For The Rest Of Us?
A MyParkinsonsTeam Member asked a question 💭

My husband has Lewy Body Dementia and I wondered how other spouses deal with this.

posted December 2, 2016
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A MyParkinsonsTeam Member

It's not easy my husband has dementia. I don't know what the difference is to what your husband has. He just keeps saying thing over and over. Call the doctor and he gave him something to take. He's on so many pills but they work. Doesn't do that but he just doesn't remember things that happen know. Like did I take my pill his night pills. He's good with his day pills he seem to remember. But I got him a large number clock and put it right next to the TV. He doesn't even go to the bathroom endless he ask me. So there for he wets his pant some timel . But I always keep depends on him. He's had Parkinson for about 7 years he's 80 years old. Thank God I have an aid from 9:30 am to2:30 pm. It helps a lot. She give him a bath which I couldn't do anymore because of my medical problem. Whatever else he need doing the time she here.

posted December 14, 2016
A MyParkinsonsTeam Member

My mom has been diagnosed with PD. 12+ years ago has just been diagnosed with Lewy Body Dementia on top of that! It's horrible

posted March 16, 2017
A MyParkinsonsTeam Member

My husband had a UTI. It was really bad. Had to end up putting him in a nursing home. I just can’t take care of him. I have a some medical problems. I really feel so bad about it. But every body keeps telling i just can’t do it anymore. Even some doctors we go to. They said i did a great job with him and i shouldn’t feel bad about it. But it really hurts. My friend husband had lewy body dementia. His was really bad only lasted a couple of months. So i pray you that have that got it in time for help. God Bless You All.

posted June 5, 2018
A MyParkinsonsTeam Member

My husband, age 80, has LBD. I am trying to learn about Parkinson's. Ann

posted January 28, 2023
A MyParkinsonsTeam Member

I've also had to have my husband in a care center. With my medical issues I could not take care of him any longer. How did you know he had lewy body dementia? I am so confused about all this. The days that are good are really good and the others are really bad thank you for sharing

posted April 15, 2022

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