Connect with others who understand.

sign up log in
About MyParkinsonsTeam
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Many Of You Have Lewy Body Dementia Or Have A Spouse With It? Do You Have Any Advice For The Rest Of Us?

How Many Of You Have Lewy Body Dementia Or Have A Spouse With It? Do You Have Any Advice For The Rest Of Us?

My husband has Lewy Body Dementia and I wondered how other spouses deal with this.

A MyParkinsonsTeam Member said:

It's not easy my husband has dementia. I don't know what the difference is to what your husband has. He just keeps saying thing over and over. Call the doctor and he gave him something to take. He's on so many pills but they work. Doesn't do that but he just doesn't remember things that happen know. Like did I take my pill his night pills. He's good with his day pills he seem to remember. But I got him a large number clock and put it right next to the TV. He doesn't even go to the bathroom endless he ask me. So there for he wets his pant some timel . But I always keep depends on him. He's had Parkinson for about 7 years he's 80 years old. Thank God I have an aid from 9:30 am to2:30 pm. It helps a lot. She give him a bath which I couldn't do anymore because of my medical problem. Whatever else he need doing the time she here.

posted almost 4 years ago
A MyParkinsonsTeam Member said:

My mom has been diagnosed with PD. 12+ years ago has just been diagnosed with Lewy Body Dementia on top of that! It's horrible

posted over 3 years ago
A MyParkinsonsTeam Member said:

My husband had a UTI. It was really bad. Had to end up putting him in a nursing home. I just can’t take care of him. I have a some medical problems. I really feel so bad about it. But every body keeps telling i just can’t do it anymore. Even some doctors we go to. They said i did a great job with him and i shouldn’t feel bad about it. But it really hurts. My friend husband had lewy body dementia. His was really bad only lasted a couple of months. So i pray you that have that got it in time for help. God Bless You All.

posted over 2 years ago
A MyParkinsonsTeam Member said:

my husband is 78 and he has lewy body also, it is very difficult at time, when his confusion sets in, whenever he gets a serious cold or pnuemonia or serious constipation, his confusion get so much worse, but I am so I want to keep him home with mean not nursing home, It is very difficult at times, but then there are good days when we are both thankful for. He also sees double at times, and is very aware of his mixed up brain and thinks he is a burden for me, so heartbreaking! He tried the new drug Nuplazid and that turned out to be disastrous, side effects were horrible and he was hospitalized for over a week waiting for 1 pill to get out of his system. We are going to try Donazipril when he is over his bronchitis, hoping that'll be helpful. does anyone else have any good experiences with drugs that help with halluncinations and confusion?

posted 8 months ago
A MyParkinsonsTeam Member said:

It's the endless same Q?s and yes forgetting to go to toilet and he hates having a bath and shaving

posted over 2 years ago
Browse more questions and answers
Continue with Facebook
Sign up with your email
Already a Member? Log in