I realize this issue should be the least of my concerns. However, people seem to stare uncomfortably at my hand tremor on a daily basis. Sometimes I pretend that nothing's wrong, or I hide my right hand by crossing my arms, but at other times I say it's a hand tremor. I never mention having PD. Strangers often ask if I need help, something to drink, escort to my car etc. Thoughtful gestures, but I am uncomfortable with any attention that my tremor may bring... Can anyone relate to this issue?
I stabilize my right hand with my left if I am signing my name with those electronic pens at a register. My right hand may stay in a pocket unless I need it. People look at me a bit odd when I hold my hand when I write. As simple as pushing the back of my right hand with left index finger is enough sometimes it takes more when im signing a small receipt. I dont mind saying I have PD to people. One lady said that my handwriting was amazing and wished someone would have told her dad about that "cheat" a few years ago. She said he stopped writing all together. If someone stares at me, I will ask them if they are okay or is there something bothering them. Most of the time that flips the focus onto them not me. They dont know what to say. I say," I know I live with a bad roommate called Parkinsons. Just havent found a way to kick them out, we are both on the lease you know." They either smile or frown. If they frown, I tell them "dont worry, the parkinsons isn't really thrilled about living with me either, because they know eventually I will win and kick parkinsons to the curb til then I just ask the neighbors for patience until I do." I dont let people get me down. My favorite movie is "Heartbreak Ridge"...favorite line "I told him Dont Give The Prick The Satisfaction"(of watching me fail, be hurt/be marginalized). I am battling an enemy and have become sooo much stronger than they could ever imagine♡
Like you I hide my hand. But mostly at the dentist. He and his staff are Thoughtful and know that when my legs shake dont say anything and just focus on my comfort
Put your thumb and forefinger together and this will stop a tremor. It is an acupressure point. Or just put your tremor hand on your thigh to still it. Or make a fist.
People can be rude. Don't tell them you have PD unless they are terrible. Then watch them sink away in embarassment. Score! PS: I hate it too when people stare.
It is what it is,tell them you are a cocktail shaker
My husband right arm use to shake but since he's been on medication he's fine. Thank GOD. But he does have dementia. He's very forgetful about thing that happen right know. Let he takes his meds and in a few minutes he ask me did I took my pills. It really hard. But we have an aid now so it is really a great help with him.
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