My dad will obsess over situations or things, whether it's realistic or not. As an example, he has approximately 50 pictures in frames. Even more loose in a box. He wants all of them in his room hanging on his walls. That's his fixation right now and it's not something that can realistically be done. We are gently suggesting to him that we sit and do a scrapbook together and hang some on the wall. We've even suggested hanging some in other parts of my daughter's home. He isn't confined to one… read more
Go to Davis Phinney Foundation website and get their free 100 odd page workbook called Victory Counts...tons of info on PD, what to expect, etc...also go to university of British Columbia website and check out their videos on various aspects of PD...very informative....none of us asked to join this lousy club we belong to, but we have to keep on fighting the good fight John
Levodopa/Carbidopa seems fairly benign relative to obsessive behavior... take one tablet five times a day with Azilect, with no side effects...my best thoughts and prayers to you for helping your dad....having a compassionate caregiver means a lot - John
From the Parkinson's Center at Univ of British Columbia:
There are very good symptomatic treatments
You are unique. Your medication plan will be different from other people with Parkinson’s disease
Take Parkinson’s meds with food or a light snack with 4-6 oz. liquid. Try to avoid eating protein at the same time
Symptoms can be made worse by stress and anxiety. Support is available to help you manage the stresses in your life
Studies have shown that approximately 50% of people with Parkinson’s disease do not take their medications as prescribed and this can have a big impact on the way they function on a day-to-day basis
To make it easier for you to manage your medication, you may want to use a pill alarm (epill.com) or your pharmacist can package your pills for daily use
Yes, obsessive behaviour is common. My wife can't have a deadline without obsessing about it and want ing it done .. now. we had Thanksgiving at our house with dinner at 2. Turkey should have gone in about 4 am, instead she got up and put it on at midnight. Also just wanting things "to be like they were" which can mean anything from paying bills way ahead, to leaving an hour early for a ten minute trip to get someplace...or some such variation. I just go along with it and try to keep the conversation about obsessions ongoing. It hasn't gotten out of hand muich, and most of the time, it is very doable. My best to you as you figure out this journey with your dad. It is hard on everyone...main thing is to not gt sucked into his bizarreness to the point that you don't take care of you.
@A MyParkinsonsTeam Member, thank you for this information and the reassurance that I'm not going crazy. Lol So far, we've figured out that we just need to pick our battles.
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