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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Will Be Part Of A Team Representing The PD Community On Capitol Hill On Feb 28th. Do You Have A Question We Can Formulate ? Nik Roberts

I Will Be Part Of A Team Representing The PD Community On Capitol Hill On Feb 28th. Do You Have A Question We Can Formulate ? Nik Roberts

Please interact with your congressman & voice your concerns.
http://ziplook.house.gov/htbin/findrep?ZIP=

posted over 5 years ago
A MyParkinsonsTeam Member said:

@NikRoberts - Aside from the most obvious of wanting a cure found for this horrible disease I wonder if there has ever been any thought given to special facilities to care for people with PD. There are Alzheimer's facilities in nursing homes and some homes specifically for patients with that disease. But, PD patients are placed in the general population with all others. At lease that is the way it is in Columbus, Georgia. As we are all well aware, PD patients require specific care and medications administered timely and that does not happen in the general population facilities. Thank you for your willingness to travel and represent those of us who suffer from PD or are caregivers for loved ones with it. I am the latter. My husband has PD and it is difficult for both of us both physically and mentally. God bless and keep you.

posted over 5 years ago
A MyParkinsonsTeam Member said:

You betcha I don't quit u gotta beat me

posted over 5 years ago
A MyParkinsonsTeam Member said:

Hi Nik....thank you for your efforts in flying up to DC....I would like Congress to appropriate a lot more money to help find a cure for this insidious disease....my best thoughts and prayers to everyone going with you on my behalf....keep on fighting the good fight John

posted over 5 years ago
A MyParkinsonsTeam Member said:

@NikRoberts. Hi Nik. If you are anything like the rest of us with PD and I think you are, you have been searching and searching and searching for answers. I thank you for coming to us and asking us if we have any questions. But the only questions we have are the same questions you have and anybody else with PD has. When will we have a cure? May you be guided by the hand of God and that
God abides by your side. Sterling

posted over 5 years ago
A MyParkinsonsTeam Member said:

Medicare needs to make a stipulation that PT for patients with PD should be 100% covered even with a Medicare Advantage plan. I have to get therapy about twice a year and with the insurance copays, it just about breaks the bank.

posted 2 months ago
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