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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Long Did It Take To Get A Diagnosis ?

A MyParkinsonsTeam Member asked a question 💭
Montreal, QC

I have read that PD is the most misdiagnosed and misunderstood disease.As for myself, It took 8 years to get a proper diagnosis.It is even harder to get a Parkinson's diagnosis if you are under the age of 45.Because YOPD is rarely seen.

February 25, 2017
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A MyParkinsonsTeam Member

Took about a year and a half from age 60 to 62 before PD diagnosed because never did show all the 3 out of 4 symptoms at one time for clinical dx until after deciding to get DBS for ET and in ruling out PD they finally saw some rigidity. I think I probably had young onslaught PD but it never came up because the familial tremor and antidepressant meds masked it from clinicians.My theory, anyway. But I did respond to PD meds, so they looked more closely. Hard to find it, even when they are looking for it.

February 25, 2017
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member for PD you need a Mouvement Disorder Specialists

February 26, 2017
A MyParkinsonsTeam Member

This is were the spec dat scan can help with diagnosis.

February 26, 2017
A MyParkinsonsTeam Member

I was diagnosed first shot. I took in two samples of my hand writing which were written about a year apart . The neurologist took one look at them and said you have Parkinson's.

February 26, 2017
A MyParkinsonsTeam Member

I was diagnosed at 39 years old. Every doctor I went to saw it immediately. My symptoms were slow gait, rigidity, slowness of motor skills. I also was depressed and anxious. I thougth I was nervous, or having post partum depression. I had just stopped nursing my 20 month old baby. It is now 27 years later, and I am still working, and enjoying life, even while dealing with this insidous intruder (PD). I now have four grandchildren. I have been blessed because my progression has been extremely slow, but never-the-less, constant and persistant.

February 26, 2017

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