Has anyone had success with the duopa pump?
Basically, it is similar to an insulin pump for diabetics. In this case it is PD medicine that goes from a cartridge and to your brain. As it was explained to me the medicine gets to your brain quicker and you can be on an even keel mobility-wise for up to 16 hours straight. The day before the procedure I had to have what should been a 20 minute surgery.to put a tube inside my abdomen to get this medicine to the brain. The surgery took two hours and some minutes. I was out of it all night. In the a.m. they put the medicine in me and for a while I was ok. Little did anyone know I had been overdosed. Just for an example, they were supposed to give me say, 4-6 mg and they gave me 29 mg.I had a mighty severe reaction with my heart, blood pressure, sweating profusely, delerious, severe abdominal pain...I think you catch my drift.
yes it has been a great success for me. had issues with the procedure and inserting the J and G tubes, but once that was successfully navigated and my dosage given in the correct amount, it has been amazing!
I have been on DUOPA for over four years I’ve had very few problem with it. it definitely made a difference in my life. The stoma is easy to care for. I would do it again in a heartbeat
I have not been on this site for awhile. I am very happy to read you are doing so well with the duopa proc. Am sure much time and hard work was put into getting this treatment to PD community. perhaps it wasn't meant for me.
i looked through a lot of papers but I think it is important to get the exact numbers out on my post. Although I clearly stated the numbers I was using for duodopa were just an example here are the actual numbers. I was given 2.9. According to mathematical calculations done afterward it should have been between 1.4 and 1.6
I consulted with attorneys who said there could be a question of viability and also since I had no permanent damage that would be another hurdle..