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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Honest Are We Being?

How Honest Are We Being?

i have read many responses on these pages and just love being in contact with you all----but do we all speak of how we are really doing emotionally, physically, thought wise, and all ways?------i hope so because if you need to vent, please do----this is the place to do this----no one will be judging you----and good, happy responses are great----just be true to yourself and what you are dealing with..Bonnie..

A MyParkinsonsTeam Member said:

Thanks for the post, Bonnie. I think most people are honest in the comments they share. However, I do believe that most people start by sharing positive comments until getting to know others better. Most of the comments posted do seem to be predominately positive, especially given the many challenges each of us confronts on occasion or routinely with Parkinson's. Thank you for inviting open, honest discussion and posts on a wide range of topics and concerns , whether they are pleasant or unpleasant. Thank you. I look forward to participating in more discussions after I return from a short trip to visit a friend in Hawaii. How awful! :-)

posted over 4 years ago
A MyParkinsonsTeam Member said:

Hi, @CherieEllam. I had a problem with leaky eyes as well. My eyes would leak if I yawned, smiled, spoke, sneezed, coughed, or went outside on a sunny day. I felt like everyone must think I am crying. Despite the fact that they were always wet, my eye doctor said it was 'dry eye'. He explained that as we get older certain oils in our bodies dry up and with the eyes, tears are made of water and oil. When the oil dries up your tears still try to moisturize your eyes, but they can't work properly because the oils are no longer there. He recommended some eye drops to use a couple of times a day. That really helped. Talk with your eye doctor about it.

You don't need to feel like a loser here. You are welcome to talk about any problems you may have with Parkinson's. There are no judgements. You are not a whiner or hypochondriac. You are a women who needs some answers, advice or just a place to vent your frustrations about your illness. You will meet a number of other people who know what you are going through.

I hope to hear from you again.
Take care.
Julianne

posted over 4 years ago
A MyParkinsonsTeam Member said:

Yeah, I think most people are honest about what's going on but of course, you always have some folks that are shy or hesitant to say, "Hey, life sucks wind right now." They just don't say much at all. And it's hard to know what to reply to someone that is being honest that things are pretty crappy at the moment and I think some folks don't want to put others on the spot like that. Don't want to make other people feel awkward. I think that when we see someone that is having a hard time and admits it though, we need to respond in some way, to make them feel comfortable and that they are with people that understand.

posted over 4 years ago
A MyParkinsonsTeam Member said:

I think the majority of people are honest about their feelings and the way PD has impacted on their lives. I know this site is very useful and the group are very considerate and understanding to each other.

posted over 4 years ago
A MyParkinsonsTeam Member said:

I have to agree with CherieEllem; this is one place that you can be really honest....I often don't feel comfortable talking to non-PD people about what's really going on with me. Like she said, I think they feel you are whiny or a hypochondriac. You can be really honest here and folks KNOW you are real. :D

posted over 4 years ago
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