Can anyone tell me approx what stage they where in when they started falling?
My Dr. tells me that I'm in stage four of PD. I'm in my 25th year . I have fallen several times - broken my arm, my ribs, and banged up my knees more times than I care to count. My balance is very scary. I have a power chair for home use and rely on a wheel chair for outings. I need help to accomplish every day tasks, and I have the most loving and supportive husband one could ask for. Not once has he ever complained or been annoyed with me when I couldn't do something or made a mess. I truly believe that having good support is what makes it bearable. I'm thanking God every day for how he has blessed me. He holds my future in His hands. I have nothing to fear.
I agree it you have a good support network of family and friends you are very lucky I have a large family who live nearby and they are always there for me, helps me to stay positive I believe you can slow down the progress if you keep active and have a positive attitude
I am also BI-Polar so in 2012 my meds were all messed up to the point I was unable to function on my own, I was living in Nashville and finally found a good Parkinson's Movement Disorder neurologist at Vanderbilt and he and my Psychiatrist started all over and got me to a good baseline on my meds but I had to go thru 8 months of rehab to learn how to eat, hold utensils, drive, drink from cups, walk etc.. and at the end of 2013 I was able to get my drivers license back and went back to work. I got much better for a while and then we moved to Denver in late 2016 and I started to decline again, more cognitive issues and tremors were pretty bad. My neurologist said I was a good candidate for DBS surgery and I had that in July 2018 and other than a continued slow cognitive decline which forced me out of work, my balance and tremors are just about gone. I attribute my improved movement and balance are a result of Physical therapy 2 times a week for past 2 years, pulmonary rehab 2 times a week for past year and me just getting out more.
My balance has recently become a problem. I’m falling approx. 2x’s a day. I have been hospitalized twice. My first severe fall tripped up my front steps in September of 2017. Broke six ribs Ouch. I was still doing restorative yoga at that time. Just this past yr I began falling forward and backward. I was hospitalized for a busted my lip. Had 30 some odd stitches in my lip. Tip: don’t ever allow ER doc to work on your face. They might have an on call specialist to use. Which I did use but not because the ER doc told me. I called my friend, a cosmetic surgeon, who told me to ask about on call surgeon 😷
I fell from the very beginning. In fact, falling was my main symptom, along with the loss of smell, scrunchy handwriting and shaking when I tried to use tweezers. So I would say from stage one to present stage four or five. I fell six weeks ago and fractured my spine. First known broken anything from 15 to 20 years of falling so I am thankful for so many non broken bones over the years.