So sorry to hear that. I have facial dystonia pre-DBS. It was lasting 4-6 hours each day during off times at various times of the day. Now since DBS, it's pretty much 1-3 hours a day during my 2 PM dose of Rytary. I'm thinking about adding ragasiline to help level out the off times. Where did you have your surgery, if you don't mind me asking? Are you still working with your settings?

i developed a rough dystonia post DBS every 30 seconds lasting 5 seconds, going on for hours and being very hard on my joints.Went away when tapered off low dose Lexapro.(20 mg/d). Didn't have it when the stimulator was off i don't have the figures for the settings but when they increased me to get my foot unstuck from the floor it appeared.