Has Anyone Been Reading Up On The Two New Drug Therapies For PD? | MyParkinsonsTeam

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Has Anyone Been Reading Up On The Two New Drug Therapies For PD?
A MyParkinsonsTeam Member asked a question 💭

I had mentioned the drug before which was a one pill slow release Amantadine which is called Gocovri, which is being used to treat dyskinesia It has been approved by the FDA. It is for those who experience side effects from amantadine now have another option. The second drug is Exenatide, a medication used to manage diabetes. Primary outcome was an improvement in motor symptoms and may slow the progression of PD. All information was taken from the Parkinson Report Fall/Winter issue just in… read more

posted October 23, 2017
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A MyParkinsonsTeam Member

My husband (a dr. of psychopharmacology who dealt with patients with PD over his 38 year medical practice) has PD and has recently researched the drug Exenatide (also the one referenced in the Michael J Fox Foundation). He has found two issues: side effects related to pancreatitis and also kidney function. Secondly, it is not covered by drug plans for PD. Cost would be $700 per month. He is checking with his dr as these side effects would be risky for him. There has only been one study on Exenatide. To me, if the doctor clears him for it, we’d find the money.
He researched the other drugs mentioned. Sorry to say that They are about 5-10 years away from possibility for humans. He hasn’t found any evidence that they have started trials on humans. Still in animal testing phase.
On a positive note, his daily vigorous exercise has been a major change in his flexibility. Now he actually looks better than he feels.

posted June 23, 2018
A MyParkinsonsTeam Member

I have read about the extremely promissing drug "anle138b" which is expected to be marketed some time in future. Developed by German Researchers(UCal/San Diego also involved), this drug has game changing scope wit several Diseases.. I hope this drug will soon be available ! Does anyone has more Information on the current Status ?

I also read about a drug "LAG3", recently. Has anyone more Information ?

posted March 6, 2018
A MyParkinsonsTeam Member

I've been following with a great deal of interest the developing information on angiogenesis. Zhittya Regenerative medicine is floating this boat and their information makes a strong common sense argument for an actual cure for PD. I'm usually pretty skeptical, but this stuff is fascinating.

posted March 6, 2018
A MyParkinsonsTeam Member

Hi,I take 6 of the levodopa a day ,2 before breakfast then 2 before lunch and 2 before dinner.I found if I took the 2 before dinner to late it interrupted my sleep at night,so I take them at 8 am then 12.30 and the last dose at 5.30 before Dinner..hope this is helpful,cheers Maria

posted January 11, 2019
A MyParkinsonsTeam Member

I get low blood pressure after sitting or lying down, or even exercising rapidly, then walking over to another area of gym. I only take 3 1/2 carbidopa-Levodopas all day: 1 in the AM 1 around 2:45 PM and 1 to 1 1/2 at 9:30 PM. The other night after sitting over an hour and getting up off balance it was 88/55

posted October 3, 2018

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