My husband had the DBS implant four years ago. The first implant got an infection and had to be removed, he was on strong antibiotics for 6 months and got well. He then wanted to have the implant again. I was a little surprised, but he explained to me that he now knew the difference in having the DBS and not having it. When it is in, he takes a lot less medication. This took away the dyskinesia. He was diagnosed in 2003 so he was having enough symptoms to be noticeable to others. Two other doctors had mentioned DBS to him, but he wasn't ready at that time. I advise you to listen to your own body, you know it better than anyone and you will probably know when it is time. Good luck to you
I am just getting into the process for my DBS surgery. So, even I am decided to do it, your experience is very important to me.
I would really like to hear from anyone who has had the DBS surgery. My new neurologist said that "data supports having it done earlier rather than later." I'm not sure that I want this procedure, but if it makes a huge difference and reduces the amount of medication that I take, it might be something to consider. Why did the new Dr recommend it, and the previous neurologist never mentioned it? And I am a little concerned that someone with this implant should try to avoid going through security screening/gates. I travel a lot with my daughters, and there are also security gates at amusement parks these days. Hard to avoid them. Have any of you had the DBS implant?