Deep Brain Stimulation (DBS) What Are The Risks? | MyParkinsonsTeam

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Deep Brain Stimulation (DBS) What Are The Risks?
A MyParkinsonsTeam Member asked a question đź’­
posted November 13, 2017
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A MyParkinsonsTeam Member

I had my DBS surgery about a year and a half ago. I was on RYTARY pre surgery, taking 3 capsules 4 times a day, post surgery, 1 capsule 3 times a day, walking improved 90%,, confidence 100%, driving again (short distance low traffic only).
I would do it again, in a heartbeat, if my doctor recommended it!. Diagnosed in 2013, surgery 2/5/19.

posted July 9, 2021
A MyParkinsonsTeam Member

My husband has had Parkinson's for 10 years and his meds were no longer helping with the tremor - but he was taking so many that the meds themselves were affecting him very negatively... staggering, tired, generally out of it.

He had DBS in June and he's improved 80%. He has not been able to cut down on meds but has switched to Rytary which doesn't have the awful side effects. He walks fine, has put on 10 lbs, is less tired. He says it was a difficult procedure but he would do it again without hesitation.

posted December 21, 2020
A MyParkinsonsTeam Member

Good for you. I did mine 7 months ago. I feel great. I would recommend to everybody who a chance to do it so.

posted July 20, 2021 (edited)
A MyParkinsonsTeam Member

I have had two DBS surgeries. Never change the dosage of your Parkinsons Disease medication. The CL which you should be taking does have some side effects and also tbere is medicine that relieves the "off periods" of CL. DBS surgeries provide some relief for tremors but not complete relief. DBS surgery is performed with the patient awake. As you know from having the surgery is a great solution to some of the symptoms of Parkinsons. I didn't realize that specific symptoms of Parkinsons could be relieved with DBS. The most dramatic effect is shown in the surgery you are asked to draw a concentric circle with the DBS off - the circle will be wildly uneven. Turn the DBS on and the circle is almost even.

posted September 23, 2022
A MyParkinsonsTeam Member

I got DBS early on. Immediate quality of life improvement in my foot dystonia and hand dysfunction. One negative! Robs me of my coaching voice .

posted January 29, 2021

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