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A MyParkinsonsTeam Member asked a question 💭
Newcastle, UK

My husband doesn’t talk to anyone about his fears for my / our future. I can see he’s struggling. Any advice out there? What can I do?

November 19, 2017
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A MyParkinsonsTeam Member

Hi @A MyParkinsonsTeam Member, a couple of things spring to mind:
1. is to do more exercise together, my wife and I go to Pilates and Yoga classes a couple of times a week (I have PD) it helps my balance and fitness, and we're doing stuff together.
2. are there any Parkinson's working-age-groups near you? We are members of a local group, so we have met people with parkinson's - to see how everyone is coping. Your husband will meet other carers. It all helps.
Knowledge (& exercise) is power.
Good luck

November 19, 2017
A MyParkinsonsTeam Member

I go about every 4 months-primarily for refills. nothing new data is put out. I learn from my monthly support group meeting and off the computer.
some items off this link do come in handy

December 2, 2017
A MyParkinsonsTeam Member

Coming to terms with Parkinson's for me was very difficult.
Stage one positive but scared. I won't let this change me. I will carry on as normal.
Stage two I can't carry on as normal but I will do as much as I can.
Stage three the medication isn't working feeling really low don't want to wake up any more. Very depressed.
Stage four the start of recovery talking to someone else with Parkinson's, stop being scared of meeting with other people further along their journey, realising their journey is not your journey.
Stage five finding comfort from the strength of others including carers, trying to understand what the people closest to you are having to put up with.
My journey is ongoing if my experience helps others, which in turn helps me, it gives a difficult situation more meaning.

Hope this helps Mark

November 23, 2017
A MyParkinsonsTeam Member

Thanks @A MyParkinsonsTeam Member,things have actually been improving. I’ve had great advice. I think I’m also gaining insight and strength from people on this forum.

January 12, 2018
A MyParkinsonsTeam Member

Thanks @A MyParkinsonsTeam Member I’m just chipping away! Im finding that I’m getting good support from this site, which helps a lot.

January 8, 2018

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