My husband doesn’t talk to anyone about his fears for my / our future. I can see he’s struggling. Any advice out there? What can I do?
Hi @A MyParkinsonsTeam Member, a couple of things spring to mind:
1. is to do more exercise together, my wife and I go to Pilates and Yoga classes a couple of times a week (I have PD) it helps my balance and fitness, and we're doing stuff together.
2. are there any Parkinson's working-age-groups near you? We are members of a local group, so we have met people with parkinson's - to see how everyone is coping. Your husband will meet other carers. It all helps.
Knowledge (& exercise) is power.
Good luck
I go about every 4 months-primarily for refills. nothing new data is put out. I learn from my monthly support group meeting and off the computer.
some items off this link do come in handy
Coming to terms with Parkinson's for me was very difficult.
Stage one positive but scared. I won't let this change me. I will carry on as normal.
Stage two I can't carry on as normal but I will do as much as I can.
Stage three the medication isn't working feeling really low don't want to wake up any more. Very depressed.
Stage four the start of recovery talking to someone else with Parkinson's, stop being scared of meeting with other people further along their journey, realising their journey is not your journey.
Stage five finding comfort from the strength of others including carers, trying to understand what the people closest to you are having to put up with.
My journey is ongoing if my experience helps others, which in turn helps me, it gives a difficult situation more meaning.
Hope this helps Mark
LDG, being diagnosed with PD is something you don't anticipate but life could be a LOT worse. PD is something you can lead a full life with and die of something totally unrelated decades later. My advice would be "don't push", he will only push back. Let some time pass and he should realize that it is not all that bad. It is not something you want to discuss with other people until you get a grasp on it yourself. Sounds like you will be a GREAT support person for him, just be patient.
My wife seemed to be denial of my PD initially. It was a challenge to her security and future. We tried to talk at first but after a few months she was ok. It is something that you need to picture yourself in their shoes and consider how you would react in the reverse. I think once she realized that I was not on my "death bed" that only time can show, she began to face the situation.