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I'm Considering DBS.
A MyParkinsonsTeam Member asked a question 💭

If you've had the surgery, what can you share regarding your experience with it?

posted November 23, 2017
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A MyParkinsonsTeam Member

Gavin your find after you dbs op your body will be exhausted from the surgery mine was and once your meds start to be reduced your sleep pattern should normalise. I was on sleepers called Zopiclone for two and a half years and was lucky if I could get 4hrs straight sleep taking them I still take them every now and then but certainly not every night anymore. My friend whom also has pd her GP will not prescribed them to her citing their addictive bloody stupid statement if you ask me so are pd meds. Luckily for me my GP is more understanding her dad had this so she has personal experience as well.

posted December 4, 2017 (edited)
A MyParkinsonsTeam Member

In have lots of info for anyone that is interested.

posted November 27, 2017
A MyParkinsonsTeam Member

Hi Susan all information gladly welcome, would you like to be a part of my Parkinson's Disease team? Regards Gavin x

posted November 27, 2017
A MyParkinsonsTeam Member

I had one 52 when I had my first dbs and I had another one later on.

posted November 27, 2017
A MyParkinsonsTeam Member

I have had surgery in march 2017 for very aggressive distonia, painful stiff joints and tremors. I can tell you it was the hardest decision I ever made but certainly the best one it doesn't answer all our individual problems so go for the symptoms that are causing you the most problems. Most now when meeting me for the first time are gob smaked when I tell them I have advanced Parkinsons disease. Feels like freedom my problems now I can address by putting me first rather than others.

posted November 26, 2017

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