Hello, my daughter has Early Onset Parkinson’s . I know in States you have Rock Steady Boxing which helps many people. I was wondering what excercise regimes do you find helpful that is available in the UK. Would you consider Rock Steady if it was available here?
At first, my husband was hesitant about going to RSB, but agreed to give it a try. He LOVES it. He gets exercise and interaction from others with PD. He has had PD for 30 years and sees that he can do things some of the others can’t and he can’t do some of the things others do. The group is mostly men and they’re like a bunch of middle school boys. They tease and play tricks on each other.
We live in the sticks so to far to travel before. But probably leaving work soon so perhaps then. It looks more movement to music and tailored to capabilities.
If she isn't too bad join a dance class. I do ballroom and Latin. I have very good balance. 7 years on from diagnosis and 8 from my first lesson, my feet and brain aren't speaking to each other properly. Dancing faster dances is impossible but I try for the exercise. Slow ones my wife can pull me through. I won't win any competitions and I know it's poor. But it helps keep the signals going to my legs and feet. It is social and I have my balance. So I keep going but join the beginners group now.
You neurologist should refer her to a PD specialist physio. It's part of the NICE guidelines.
Mine is the best person out of the PD team I see incl Dr and PD nurse. She has the time to explain my symptoms how and why they happen. Will listen to my fears and thoughts. Wonderful. Plus she checks my movement gives me tips to deal with problems and sets light body loosening exercises for me. It's a shame she doesn't do private sessions. She'd be worth every penny. I'd do those as well. NHS is about twice a year. But as I said I really value them.
I would definitely recommend it because a friend of mine with PD goes to a class in a town where I used to live and he has been helped. Unfortunately there is no Rock steady Bosing near me now so the health club with treadmill for working on my gait and machines for strength is about all I do there except use the massage chair and bed. I sldo have exercises to do that I got from having rehab for gait and balance which are helpful.
I am a fan of rock steady boxing, however I have found Tai Chi, Yoga, and stationary bicycling good also.