My husband is 62 with PD. I am amazed how quickly it is progressing before my very eyes! It is so heartbreaking!!
He is taking megopar and hasn’t seen his PD specialist for 18 months nor had his medication upped, it has remained the same for so long, as GP is not allowed to do this or change his medication.
At long last, we have an appointment to see specialist who is coming to our small town this week.
Does anybody know whether upping or changing medication will slow PD down… read more
Seen specialist and took one look at my husband and said I don’t know if it’s the PD or depression. He had been walking around unshaven etc like an old man just about to die! It was depressing me just looking at him. Apparently a GP had given him sometime ago medication for epilepsy which he has not had for many years. Specialist picked up on this and scrapped the medication and hopefully this depression will lift and move on. He his 62. Thank you to those that responded😊 We need one another🙏💕
@A MyParkinsonsTeam Member: Glad the specialist is coming to town at last and hope s/he can help you with a constructive plan. I believe the the PD meds "only" help with symptoms and not cures - but that in itself has been a great bonus to me so far. Only one of my drugs is supposed to have a possible protective property (Rasagline).
However, the neurologist has said that the amount of effort/exercise/nutrititon etc you put in helps at least almost as much...
Is there a PD support/helpline in your area (in UK Parkinson's UK is manned by PD nurses and specialists) you could contact in-between visits? I also have the local Pharmacist run through my meds to check them every few months to check re side effects, etc which I have found helpful.
I really feel for you as I know the heartache having watched both my father in law and later my father decline - though was impressed by the latter's grace and dignity in the face of suffering other long term illnesses. Hugs to you.
@A MyParkinsonsTeam Member: Glad to hear the specialist had an answer and I hope that solves the problem. Please keep a sharp eye out though if it continues as depression, apathy and low moods are aspects of some PD. My father's PD wasn't picked up on for years as it was disguised by his heavy meds for neuropathy, stenosis etc.
He had to go to an older persons specialist, who shed some light on the matter. I hope it does just turn out to be reversible side effects. Good luck! x