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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 30, 2018
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A MyParkinsonsTeam Member

Amatadine has been very helpful.

January 30, 2018
A MyParkinsonsTeam Member

descanazia is cosede b y using to mutsh to long periode.

February 12, 2018
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member you have to see your neurologist and change the dosage of Carbidopa/Lebodopa. I started taking carbo/Levo in 2008 I was 45 years old when I was diagnosed of PD. My neurologist prescribed me a dosage of 100/250 mg twice a day of carbo/Levo. I was taking it for six years until dyskinesia got me and all kinds of symptoms that really bothered me. I feel like somebody did a spell on me.😭 When my neurologist lowered the dosage of my meds I have not had dyskinesia since then for almost 3 years now, and also he prescribed me Amantadine and Pramipexole.

I hope that helps. Be well and Take care.

January 30, 2018 (edited)
A MyParkinsonsTeam Member

@MsbernsifyHello it is interesting that you asked the question about Carba Leva. I was at Vanderbilt university yesterday and I brought the topic up as I experience the wearing off early as well.
I was given two answers. Change up the time that I take it (4 times) per day to a Different time schedule. It requires some trial and error. If that does not work there is an extended time release one available. If you have any further questions regarding this I can find out from my neurologist and share the information.
Take care
Leo Kirk

January 30, 2018
A MyParkinsonsTeam Member

I hear you loud and clear mine gets so bad I have trouble reading because I can't focus and I have trouble typing. Also I have incontinence so I have to buy pads and they are expensive and the sticky pads are h--- for me to insert. The old belt would be better.

November 13, 2023

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