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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 31, 2018
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A MyParkinsonsTeam Member

Your "couldn't care attitude" is something we all have to contend with. We have a disease that has ravaged the part of our brains that motivated us. You can see by the other answers you are not alone. I have days where I don't feel like doing much either.

A couple of things have helped me. My friends have decided to point out the "unique" things I do now. They are relentless in humoring me about it and I encourage them to do it. It makes me laugh and think about the absurdity of what my life has now become due to my PD. Obviously, this form of therapy isn't for everyone, but it sure helps me. I look forward to their phone calls and occasional visits.

One of the other things that I do is to accomplish one thing daily no matter how small. Some days just doing one thing is enough, but if I am having a good day, one becomes two or more things. That simple sense of accomplishment connects me to my "old days" and keeps me motivated. On my list today was composing this for a second time to send to you. After thirty minutes of composing an answer last night, I accidentally deleted it before sending it!

I hope this little glimpse into my life helps you. Like you, and many others, I wrestle with this lack of drive every day. It's tough coming to grips with these huge changes in our lives. I realized that I must motivate myself because nobody, other than another PD sufferer, can understand what I am going through.

Now if I can just hit the answer button...

February 1, 2018
A MyParkinsonsTeam Member

Hi Janny, Apathy is a sad thing that affects most PWP. If you are a procrastinator like I am, it is even worse as any motivation goes out the window on a regular basis. On good days, I can accomplish a lot but on what I call my indifferent days, it takes a lot for me to accomplish anything. Doing things I enjoy first or that are easiest sometimes helps to motivate me and gets me going. i find going out, even if it is just for coffee, seems to recharge my batteries somewhat. Don't despair, we are pretty much in a similar boat. If all else fails, have a nap. Take care, Hugs.

February 3, 2018
A MyParkinsonsTeam Member

@ MaryannMenardEtheridge dropping out of activities might be depression. However there are physical reasons because of PD that take your desire to get up and go, mainly the extreme fatigue and need to sleep more. I have had depression and I have PD. There is definitely a difference in the reasons to drop out. My body just will not go. On top of that, I don't want to, which is probably the depression..

February 5, 2018
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member I experienced that… Since my first symptoms were so slight I was in denial for about two years until my symptoms progressed. Then I was pissed that I wasted two years. You are not lazy, everybody deals with things their own way. I have learned that if you take 100 people with PD you’ll get 100 different observations about their life. You are not alone😄

February 4, 2018
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member - hoping this empowers you and makes you feel better about yourself (recognising that you are not "lazy"!). I have been reading some of the posts in answer to your question and found it reassuring and inspiring. My father (who had a long,debilitating illness) used to say to me "bite off your to do list a chunk at a time"!. On really bad days in the past that has really helped me to have a sense of achievement ....x

February 3, 2018

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