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Please Tell Me About Your Experience With DBS

Please Tell Me About Your Experience With DBS

My doc has offered DBS as an option in near future since my meds are not responding and no relief for tremors. Please share positive and negative aspects if you have DBS. Does insurance cover cost?
Any other thoughts or comments would be appreciated.

A MyParkinsonsTeam Member said:

I had dbs a year a go yesterday, I am no where near as reliant on my husband and on the whole, quie good. I. Do still suffer an little from panic attacks but they are manageable.
I still take meds but reduced amounts and I am able to turn up my stimulator. Tremors have gone and I have gone back to college.

posted over 1 year ago
A MyParkinsonsTeam Member said:

Had it done on the right side and in less than a year had the left side done. My neurosurgeon installed the first time a battery pack with 4 leads in case we needed to do the other side. That saved me from having a second battery pack.

posted over 2 years ago
A MyParkinsonsTeam Member said:

My husband had DBS surgeries in 2012. One installation in April and the second in June. The surgeries had to be done within a few months of each other because an MRI is not an option once the DBS is implanted. The neurosurgeon insisted both surgeries be completed before changes, that an MRI would detect, could occur. The DBS has been a blessing, no more tremors. The batteries have been replaced once, and will be replaced again in November. They seem to last about 2+ years. DBS does not cure PD, does not slow it's progression or eliminate other symptoms. But for tremors, it is a blessing beyond words. Our insurance, Kaiser Permanente, an HMO, performed the surgeries, and provides all his ongoing care. My best wishes to you on your journey.

edited, originally posted over 1 year ago
A MyParkinsonsTeam Member said:

I had DBS 6 years ago; it gave me back my independence.
Watch
https://www.youtube.com/watch?v=TWsayKFMhRY
Read my blog
http://karynsjourneywithdbs.blogspot.com.au

edited, originally posted over 2 years ago
A MyParkinsonsTeam Member said:

I had DBS 15 months ago. It has enabled me to reduce my medication from 24 sinemet per day to 8, which has given me back a normal life.

posted over 2 years ago
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