I have low blood pressure and PD all by itself lowers it more, as do PD meds. My neuro suggested compression stockings (thigh highs, actually). Hard to get on, but what a difference! Now I only feel dizzy before I put them on in the morning. Rubber gloves help a great deal in getting them on. I got them at a medical supply house, but found them online for much less. (Also, less likely to wake up to pee in middle of night, so I sleep better.)

Also, you need to stay hydrated (I drink water before I get up in the AM) and be sure to get enough salt (depends on your heart health, though). I sleep with my head elevated with a wedge, which helps, too. I don't take any meds for this.

I agree that you need a new doctor. This is treatable.

Morning Donna: thanks for your reply and apologies for the delay in mine . I'm now seeing a different doctor and have a handle on my low blood pressure - I take 10mg of midrodine 3 times a day which usually does the trick. I have to eat regularly and drink tons of water too (i neglected to yesterday and its in the 90s here in Houston, so I'm paying for that today - low blood pressure since waking and dizzy to point of fainting when I stand).
The midodrine is treatment for low blood pressure. For Parkinson's symptoms the doc switched me to Rytary and it's working so much better. If you're dizzy allows the time, you might want to ask your doc about midodrine (there's also a drug called Northera that my cardiologist recommended for Parkinson's patients with low bp)
I'm still nothing like I was 18 months ago, when I was still feeling normal . Still can't do a lot of the things I used,to and I'm afraid to go out of the house on my own because I keep falling backwards now. Nothing to do with bp- no dizziness ,just find myself hurtling backwards and hit the floor. Very painful but no major damage yet! I'm about to post something about that too , to see if anyone knows anything about that. It's very scary.

Hi Charles: I'm so sorry to hear about your awful experience but thank goodness it sounds like you weren't hurt. I'm seeing a new specialist soon and I'll keep you all posted if I find out anything useful.

i have thew same thing that is how i lost my driver lisence .when i got out of the car i was to mutc in a rush i psset out in the store and the owner call the ambulan put the first one to get there was the cops they said it goog appen when im driving . put you no youre self i donrt appen wen yuor sitting doun .i suppose i god get my licence back put evensualy il end up looising it n any way.olk anough of my boring storry

Hi fran and thanks so much, this is really helpful. I bought a couple of different pairs of compression stockings (thigh highs) but found it exhausting just trying to get them on and off. Ill get more from a med supply like you suggest and try your rubber glove trick :) I read last night that Gatorade helps too, so downed one of those this morning before getting up. I do raise my head/bed at night but I need to remember to add salt to food. Just switched to macrobiotic diet as I read that really can help with PD.

Thanks again Fran. Your post has encouraged me - I was feeling at my wife's end.

Regards, Maddie