@A MyParkinsonsTeam Member Although my issues with neurologists is not the same as your own there are some similarities regarding confusion over diagnosis. It would seem that in your case the doctors have finally agreed that you HAVE Parkinson's. Are you seeing Dr. Sacher because of both epilepsy and Parkinson's? Whatever the reason I don't understand why she is not responding. That is unprofessional. She may be nearer but if you have been recommended a change of medications since Parkinson's confirmation and all the doctors agree you have got Parkinson's why is Dr. Sacher not agreeing to see you?
At the minute the problem seems to be being caused by Dr. Sacher not seeing you. That needs sorting! Why abandon both doctors? Dr. Sacher is the one who is not responding! What is Dr. Sacher playing at? Her diagnosis has simply been confirmed but that a change of medication has been suggested seems to have put her nose out of joint!!!
I repeat - Dr. Sacher is behaving unprofessionally! You are the patient and the doctor is not God!

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A MyParki...

@A MyParkinsonsTeam Member - sad but true - PD gets lumped in with the "it's all in your head", or it's Alzheimer's, or manifestations of various types of cerebral palsy, etc.

That having been said, this is far less prevalent now than it was eight years ago when I was first "officially" diagnosed - in 2010, I had a good deal of trouble even getting approval for going to the neurologist in the first place. Even now, I still am having trouble getting a referral to a Movement Disorder specialist

I have a world class PCP who is willing to do all the arm wrestling necessary to get approval for treatment and he was the deciding factor in getting that approval. I hope all of us in the MPT gang are similarly blessed. However from some of the stories I have heard, this is not always the case.

This is why I advocate taking as active a role as possible in managing your PD diagnosis and treatment. Don't settle for vague or non existent performance - MD's are just people like we are - and places like MJFF can direct you to credible sources for information about PD, it's symptoms and suggested causes. The more you know about PD, the better...after all, it's your body and mind this is happening to.

Somewhere along the way here, this turned into a rant - I didn't realize I had climbed on my soapbox. However, these are real issues, leaving in too many cases, both PD patients and caregivers with inadequate assistance and/or treatment.

Rant complete - thanks for listening.

All we can do is make comments, this final decision is yours! I will give this recommendation to you. Drop the doctor who is 10 hrs away. Then see your family doctor, and tell your doctor all the above. Go this web address below..

https://www.partnersinparkinsons.org/

PamelaTietgenMcIntosh. I have called and they say they will forward it so it gets to dr sachar

You might want to call office vs emails and get tough for your own safety and physical well being. Advocate for your sanity and inner spirit!🌈❤️💐