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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Moss Beach, CA

Thiamine HCI (vitamin B1) therapy has been a game changer for me and instrumental in reversing many of my symptoms. It's quite popular in Italy, where pharmaceuticals are not always the first approach used for treatment.

At 4 weeks of 2000 mg daily, Thiamine HCI these are the benefits I have experienced
• improved balance almost normal.
• relief from constipation.
At 8 weeks of 2000 mg daily of Thiamine HCI
• swift movement instead of slow motion.
• ability to get up from a chair or out of… read more

June 23, 2018 (edited)
 · 
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Answer Summary

Members enthusiastically discussed thiamine HCl (vitamin B1) therapy for Parkinson's disease after one member shared remarkable symptom... Read more

Members enthusiastically discussed thiamine HCl (vitamin B1) therapy for Parkinson's disease after one member shared remarkable symptom improvements including better balance, reduced tremor, improved gait, and increased energy at a 2000 mg daily dose over 12 weeks. Several members expressed excitement about trying the therapy themselves or reported that their loved ones had already experienced positive results with reduced tremors and improved symptoms while continuing their regular medications like Sinemet. A recurring theme was frustration that so few doctors in the US discuss this affordable, accessible therapy despite its five-year track record in Italy and the UK, with members encouraging each other to research Dr. Constantini's work and advocate for themselves by bringing this option to their neurologists.

A MyParkinsonsTeam Member

At 400mg twice/d I experienced results @ 1 h

June 27, 2018
A MyParkinsonsTeam Member

Learn more at high dose thiamine dot org where you can connect with Dr Constantini’s work

December 12, 2018
A MyParkinsonsTeam Member

I like how you covered it by weeks . question what is mucuna & where did you purchase vit, B1 & mucuna?

June 23, 2018
A MyParkinsonsTeam Member

My husband started on High-Dose Thiamine 3 months ago
with very good results!
(This is Vitamin B 1, a water-solvable vitamin.)
All his PD symptoms have improved, and even tremors are much reduced, even long periods tremor-free.
He has a nearly 6 yr hx of PD, and remains on Amantadine and c/l 25/100 three times a day.
Many US Dr are not aware of this treatment and we need to provide info to them, and inform them that it is a safe therapy, with a 5 year history in U/K and Italy.
Hoping all who read this will do their research and discuss this safe therapy with their Dr.

September 29, 2018
A MyParkinsonsTeam Member

Thanks jewelyjulia

July 1, 2018

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