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PSP

PSP

Asking if anyone else has PSP
I have fear, and I know that isn't from God. But it hard not to. I went to my neuro and she said because I am progressing so fast. My eyes are involved where Its hard to see and my eyes bounce around. and can't walk during this time. They said I might have parkinson's plus. Called progressive supranuclear palsy PSP. a degenerative disease involving the gradual deterioration and death of specific volumes of the brain they want me to go to Portland Oregon to a specialist and see… read more

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member Omigod. I am verklempt over what keeps happening to you. So, something called progressive supranuclear palsy PSP, if that's not a mouthful. How far are you away from Oregon? Do you have someone who can go with you? Can you afford the airfare & accommodations? Ask if they have any special accommodations where you can get a cut-rate. I'm so sorry you're having to go down this road, I pray, though, that this will be what needs to happen to fix things. I mean you HAVE to catch a break.Go to Oregon & the sooner the better. Keep us informed.

posted about 2 years ago
A MyParkinsonsTeam Member said:

I have had mine progress very rapidly also. my eyesite changes all the time..luckly my eye doctor has been amazing with changing my contact prescription..there for a while my eye doctor was changing my contacts every couple of weeks .then it seemed to just stop. i went through it for about six months..

posted about 2 years ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member,
Hugs to you & to others responding to your scarey, altered diagnosis. We are all rooting for a quick waiting period for you. In the meantime, concentrate on the best self-care you can manage, breathe, and keep moving! Thinking of you!
Therese

posted about 2 years ago
A MyParkinsonsTeam Member said:

Neupro felt it was going to kill me by shaking me to death. Sinemet works pretty well. I added you to my prayer list.

posted about 2 years ago
A MyParkinsonsTeam Member said:

Debbie, God loves you and He will never forsake you. I understand your fear. I struggle with it too. I am working hard to keep my focus on Christ through His word and not on my PD. Its a tough one. Find a verse that comforts you and put your focus there. God's word is alive and true so just believe and take His word literally . Your life is in God's hand and you will go home to Him in His time and not one day sooner. I'm praying for you. May His angles surround you as you take one step at a time.

Hugs, Robin

posted almost 2 years ago
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