Connect with others who understand.

Sign up Log in
Resources
About MyParkinsonsTeam
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

PSP

A MyParkinsonsTeam Member asked a question 💭
Redding, CA

Asking if anyone else has PSP
I have fear, and I know that isn't from God. But it hard not to. I went to my neuro and she said because I am progressing so fast. My eyes are involved where Its hard to see and my eyes bounce around. and can't walk during this time. They said I might have parkinson's plus. Called progressive supranuclear palsy PSP. a degenerative disease involving the gradual deterioration and death of specific volumes of the brain they want me to go to Portland Oregon to a… read more

July 5, 2018
View reactions
A MyParkinsonsTeam Member

I have had mine progress very rapidly also. my eyesite changes all the time..luckly my eye doctor has been amazing with changing my contact prescription..there for a while my eye doctor was changing my contacts every couple of weeks .then it seemed to just stop. i went through it for about six months..

July 8, 2018
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member,
Hugs to you & to others responding to your scarey, altered diagnosis. We are all rooting for a quick waiting period for you. In the meantime, concentrate on the best self-care you can manage, breathe, and keep moving! Thinking of you!
Therese

July 7, 2018
A MyParkinsonsTeam Member

Neupro felt it was going to kill me by shaking me to death. Sinemet works pretty well. I added you to my prayer list.

July 5, 2018
A MyParkinsonsTeam Member

Debbie, God loves you and He will never forsake you. I understand your fear. I struggle with it too. I am working hard to keep my focus on Christ through His word and not on my PD. Its a tough one. Find a verse that comforts you and put your focus there. God's word is alive and true so just believe and take His word literally . Your life is in God's hand and you will go home to Him in His time and not one day sooner. I'm praying for you. May His angles surround you as you take one step at a time.

Hugs, Robin

July 15, 2018
A MyParkinsonsTeam Member

Debbie, best not to read the statistics, every case is different .Lots of hugs x

July 10, 2018

Related content

View All

Still Waiting To Hear If Anyone Has Heard Of Progressive Supranuclear Palsy. My Parkinsonism Husband Is Being Tested For That With MRI’s.

A MyParkinsonsTeam Member asked a question 💭
Grand Rapids, MI

Has Anyone Been Diagnosed With PD But Turned Out To Be MSA Or PSP?

A MyParkinsonsTeam Member asked a question 💭
Branchville, NJ

Does Anyone Have Progressive Supranuclear Palsy?

A MyParkinsonsTeam Member asked a question 💭
Wappingers Falls, NY

Already a Member? Log in