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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Rytary Problems

A MyParkinsonsTeam Member asked a question 💭
Southlake, TX

I was takings carbidooa/ levodopa 4 x per day 2 tablets per time. My off periods started to increase but weren’t unmanageable. Three mOnths ago I swititched to Rytary ( 4x per day total 340 mg per time), I have been worse ( inconsistent effectiveness, each day is different, more anxiety, sleep is worse ( not sure if that is Rytary or something else). I just havedifficulty counting on the medication like I could the regular release carbidopa. I want to know if my experience is consistent (also… read more

August 12, 2018
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A MyParkinsonsTeam Member

I had no success with any PD meds DBS helped me a lot

August 20, 2018
A MyParkinsonsTeam Member

My husband has been on Rytary for several years now and he just has been diagnosed with anxiety. After about 8 years of PD, some non-motor symptoms are setting on. He did have DBS surgery last year and has seen much improvement with those crazy “stiffening up, off times.” The Rytary seems to be working pretty well. He is off Entacopone and his restless leg patches which he used to wear 24/7. Less medication now after the DBS surgery!

August 14, 2018
A MyParkinsonsTeam Member

Try to get Medifocus Parkinson update2018 a book with a new review of medication...new data topics and 2 pages about rytary

August 19, 2018
A MyParkinsonsTeam Member

DBS is great for on / off and less meds

August 18, 2018
A MyParkinsonsTeam Member

Bless your heart. I’ve heard nothing but awful things about Rytary. A friend who also has PD was on it for 8 months, felt awful and got worse.

August 12, 2018

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