Jim, my neurologist changed my carbidopa levodopa from 100 mg at night to 200 mg to get me through the night. Then upped my first morning CL from 100 to 150mg. Between the day pill and night pill, I didn't start the day off fuzzy and forgetful. I'm also on Rasagaline, which I take in the morning. I take the CL 100 three times a day, the 150 mg in the morning and the 200mg at bedtime. I sure wish you'd get back in to see your doctor. Things just don't sound right, Jim. Don't worry about being embarrassed about anything. You don't have ANY reason to feel embarrassed, even though I understand. Let me know how you are? Take care!

@A MyParkinsonsTeam Member: There is a Parkinsons Uk helpline you can contact that answers you within a number of hours. I found them very helpful when I was first diagnosed. You will have to google the number though, I am afraid.

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A MyParki...

What were your meds changed to? My memory seems to be ok for now, but I can't write very well. It's also very hard to hold a conversation, it's like my wheels are turning but nothing's coming out. It's very embarrising.

I agree! This past year I started feeling foggy brained, started forgetting things, would even be out driving somewhere and forget how to get there, even though I had been there many times before, and starting messing the checkbook up horribly. My two most used words were "thing" and "thing-a-majigger". I told my neurologist this and she laughed. I was almost offended that she laughed, but then my mind went elsewhere. She changed my meds and within 2 days it was like a lightbulb went on in my brain! My mind was awake! Alert! I haven't used "thing" and "thing-a-majigger" in months! I feel normal...

I would talk to your Dr about adjusting your meds