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I was diagnosed as of middle of 2018. It exhibits in my case mostly with balance issues, muscle rigidity and weakness, fatigue, depression ( "mourning" the old me before the manifestation of the syndrome). Plus other Parkinsonism typical symptoms.
I am still devastated with the thought of the neuro degradation, dementia and quality of life gradual worsening
I would like to get in touch with others diagnosed with FXTAS ....sharing experiences and coping.
Please feedback
R
I am not sure if you indeed have FXTAS which is very rare. If you have been diagnosed specifically with FXTAS you must know your own CGG repeats or premutation level. If you care to share more details I think I can help from my experience. Take care. Reuvenk
@A MyParkinsonsTeam Member; don't feel stupid; we all started knowing nothing to very little. Try googling it; no need to buy books.
I have had PD for 40 years now; I better be learning something by now. It is a learning process, and its looks different on everyone. Just keep that in mind. Stupid has nothing to do with it.
Hugs,
Teresa
Reuvenk
I have this. I am mired in depression and pain right now and have much fear about my future and how I will care for myself..
Good news are wonderful so be good😇🤓🤓
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A MyParki...
