Anyone Switch To Timed Released Levodopa/carbidop? | MyParkinsonsTeam

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Anyone Switch To Timed Released Levodopa/carbidop?
A MyParkinsonsTeam Member asked a question 💭

What was your experience?

posted February 11, 2019
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A MyParkinsonsTeam Member

I did about a year ago and it made a big difference. My “off time” decreased significantly, my tremors minimized, and I feel better overall. Good luck.

posted March 9, 2019
A MyParkinsonsTeam Member

I've been on the extended release since diagnosed in July of 2018. My neurologist did not prescribe the extended release formulation but the pharmacy made a mistake. They picked up their error when I went for a renewal. I contacted my dr and she said if it was working for me to to continue taking it. I don't have any experience with the non ER but I certainly have nothing but good things to say for the extended release. I take 25/100 mg carbidopa/levodopa 4 times a day and usually don't have any down time unless I've overdone it in some way or not gotten enough sleep/rest. I'm in early stages so I'm not sure if that's relevant but it's certainly worth asking your dr about.

posted February 16, 2019
A MyParkinsonsTeam Member

Id if he could work with therapist to help him work on excerecises that wold be great hj help . Hang onto something if one has to as one moves things get better to me

posted February 16, 2019
A MyParkinsonsTeam Member

He's been on it a month. 3 x per day. It seems to help with the trembling. He's still unsteady in his gait. We're 57.

posted February 14, 2019
A MyParkinsonsTeam Member

I'vd been using the timed release carbo-levadopa for several years with good results.

posted February 14, 2019

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