Not Feeling Guilty | MyParkinsonsTeam

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Not Feeling Guilty
A MyParkinsonsTeam Member asked a question 💭

How do you not feel guilty for having your husband with Parkinson put in a nursing home because he can not walk anymore or get to the bathroom and is always falling I just can not take care of him now.He is getting physical therapy, OT, SP but he ask me today to get him a grave sight and headstone.Can they loose thewill to live?He says he is tired of fighting this .I miss him so much I just can not take care of at this point unless they can get him walking again??

posted March 1, 2019
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A MyParkinsonsTeam Member

It is important to talk about your future with your spouse or your children or caretaker. Make plans and get them down on paper before your.are in a crisis.moment. Sit down with your Dr. And get an idea of what your needs are or will be. Get you finances in order. Find out if you will have the money or the insurance to pay for a nursing home. Find out if there are Day. Care centers for adults. We have them here in our county. Get all your paperwork signed. This includes wills and final wishes. Get power of attorney. It is important to get this done while you can get your voice heard. Do not wait and burden the folks you love the most in the world when you are unable to help them. This is one of the most loving gifts. you will ever give

posted March 3, 2019
A MyParkinsonsTeam Member

Have done all that years ago thank you

posted March 3, 2019
A MyParkinsonsTeam Member

So sorry you are going through this. But why are you beating yourself up that you are not super-woman. I agree with @A MyParkinsonsTeam Member - look into home care - 3 shifts, if that's what you need. That might meet both your needs - and you need to meet BOTH your needs, as best you can. Take care.

posted March 2, 2019
A MyParkinsonsTeam Member

I personally spent a month in a nursing home and I wouldn't wish that experience on anyone.
If you can afford to bring in home care, that may be the way to go.

posted March 2, 2019
A MyParkinsonsTeam Member

I’m so sorry you are going thru this. I often feel guilty getting married last year as I don’t know that my wonderful hubby knows what he is in for in future😞

posted March 1, 2019

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