Thank you so much for the info. I have been considering going to BCOM for a movement disorder specialist. I'm 30 minutes from the medical center and the Woodlands is about 20 miles and I think they have branch offices over there.

I went to the ER last Saturday via ambulance because I was unable to move. My ams and legs just were not moving and I could hardly hold up my head. Does anyone out there have similar episodes like this? I was in hospital last Aug for 9 days and they couldn't tell me what was wrong then or now.

I took Botox injections on both sides of my neck at the base of my skull on the occipital nerves for approx. 4 years every 90 days...and I thought Botox was a miracle drug because it cut the headaches way way down. But now I wonder if Botox didn't affect the rest of my body. The Dr. says it can't happen but who knows? I cannot stand up for any length of time because my back hurts so bad and it is all I can do most times just to get in the shower. I had to retire early because I was unable to work any longer... Do any of you have anything going on like this????

Thanks, MDNA

A tennis ball is a tennis ball,fits under the foot,

https://steptohealth.com/use-tennis-ball-calm-p....

General neurologist or movement disorder specialist,they are part of your team and there main role is working with you to optimize medication.You were 100% correct when you said that your cramps are not helped by a long gap in your parkinsons meds and the last night time dose and first dose of your day.
I remember the agony of those cramps and if the tennis ball helps one person suffering then its worth mentioning in the community
''Anyone for tennis''

@A MyParkinsonsTeam Member If you are in the Houston area and looking for a movement disorder specialist, go to Baylor College of Medicine Parkinsons Clinic. OMG....they are the best and all are MDS and only treat PD patients. I know it might be quite a distance from the Woodlands, but I drive 3 hours from Boerne, TX because they are the best. They’ve changed my life! Blessings — Vicki

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A MyParki...

I never really thought about this @A MyParkinsonsTeam Member but I notice that just before I take my meds I have a heaviness in my thighs and they feel like they are shaking particularly at my night dose. If I am busy doing something I do not take notice of it. In the morning I take my pill and then get busy with my morning routine of starting a furnace fire and then my yoga and then breakfast and prepping for my day..In the afternoon I am usually rushing around working on supper so I rarely notice it. At night I am having a quieter time and not as busy.

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A MyParki...

Hi there Connie N;

I've had an awful time with my legs and arms. I have to follow a very strict regimen of taking the med's exactly 6 hours apart. Yesterday morning I woke up and was nearly impossible to move my legs, arms or sit up in my chair. Hubby called 911 and off we went to the ER. What a waste of time an money. They gave me an IV with fluids and ER Doc wanted me to stay in hospital and I knew he didn't know what to do with my problem so he said if I could stand up I could go home, so I stood up. I was beginning to get a little movement in legs and arms back since we had been there about 6 hrs by that point. Today I am moving better than I have in weeks but I have the crud that is going around and have been really sick and throwing up and now I think I have pink eye in both eyes. Onward I plod.

I'm going to find a movement disorder specialist hopefully over in the Woodlands, I'm near kingwood. I do not understand why I'm having these freezing spells so often. I declined so much that I had to take early retirement and I really enjoyed my job and hated to give it up......but sometimes I couldn't hod a pen to write down a phone number.

Has anyone taken Botox for migraine in their neck and head? I had severe headaches for years and the Botox seemed like a miracle drug. But I began getting extreme weakndss in my arms from taking the Botox and that was prior to the PD diagnoses. So I think the Botox is partially to blame for my extreme weakness but of course I cannot provide evidence toward that end.

Hope your having a wonderful day :)Mdna