@A MyParkinsonsTeam Member - I found it best to tell my employer, but with the added explanation that it is just "a little, mild PD".
Difficulty swallowing - a straw really helps because you can tilt your chin down, which helps the epiglottis block the windpipe completely. Tipping the head up prevents this valve from completely closing the windpipe, which is why children who use sippy cups often develop a chronic cough and lung problems. Also a speech therapist can give him exercises to restore normal swallowing.
It is hard to admit that life changes a little with PD. It is scary and makes us upset & irritable. Hopefully he will come to realize that his loving wife is on his side and not snap at you and will be able to talk honestly about it with you. I recently had a dear friend (my 82-year-old church choir director) ask me to put together some ideas about PD from the Parky's point of view. Her son just got diagnosed with PD. I have had PD for 10 years now and went very quickly into many of the symptoms of Stage 5. Yet I am not drooling in a wheelchair in a nursing home, which is what your husband wants to avoid also, I am sure. I have also met a cyber friend who has had PD for 40 years, since the age of 19, and he lives a pretty normal life (see pic). If it would help, I will email this info to your husband. Although it works at any time, early on in PD is the best time to start retraining neural pathways that will stay with him and replace those that PD pretends to destroy. It works really to tell an employer that you know how to do this. I got a wonderful new job at age 65 by saying that at my interview. No, I am not selling anything, just sharing what has worked very well for me. Take heart, and keep letting him know how much you love him and need him. Keep doing things together that you both enjoy. He will probably need about a 1/2 hour nap or rest after work each day, but ask for his help or invite him to do something fun or look at something outside with you, etc after that to get him out of the recliner. Bless you! You haven't lost the man you love. He is still in there!
Mave do you think they remember being mean I can’t ask my husband as he just pretends it did not happen
@A MyParkinsonsTeam Member - thank you for your forgiveness & your love. Remember the more we are treated as if we are still our normal pre-PD self, the easier it is for us to get as close as possible to being that
Hi Mave how long has your husband had pd
I have a job cleaning houses get very tied so I look at that’s as my time I wrote him a email today explaining my feelings as at the moment I am also struggling with my brothers-in-law death due to aggressive cancer but I will get no reply and he will not even mention it I just have to soldier on😣 thanks everyone