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Fatigue, Malaise, Extreme Exhaustion!

Fatigue, Malaise, Extreme Exhaustion!

Is exhaustion a Parkinson's symptom? I have stuff I really want to do but the fatigue & listlessness stops me cold.

A MyParkinsonsTeam Member said:

I work 5-15 minutes and rest 5-15 minutes. I also sit down to do tasks when ever I can. Sometimes I even get more energy as the day goes on. But I also have had days that I have become so weak that I found myself crawling up my front steps on all fours. So I have learned to keep a walking stick close by when I am outside. But I only use it when I absolutely have to. I also find that drinking a nutritional drink like Boost or a sports drink like Poweraide helps on a bad day. The important thing is to always try to move some. Even if it’s just a few minutes at a time. My physical therapist told me that Parkinson’s is trying to make us small. I try to keep doing my big movements in my physical therapy. Some days are better than others. But just don’t give up!!

posted over 1 year ago
A MyParkinsonsTeam Member said:

It takes me twice as long to do the tasks I did "before" and I get tired out before I complete the activity. When I was growing up, I was taught to complete one task before moving on to another. Can't do that anymore. It is very frustrating. I've had to change my expectations/goals. Now I do part of an activity and then rest. Being retired, I have all day to do things so if it takes all day, it takes all day.

posted over 1 year ago
A MyParkinsonsTeam Member said:

Yes, I certainly have the exhaustion with PD especially in the afternoon and evenings. Mornings are best for me and I try to do everything I need to do in the mornings because after 2 p.m. I am not worth anything and might as well just go sit and read or watch tv. Even making dinner is a struggle. Cannot wait to eat and just sit down again. Just horrible having to deal with a couple of hours in the morning to actually do things. Guess I should be grateful I have a couple of good hours. Bean

posted over 1 year ago
A MyParkinsonsTeam Member said:

It is for me...it's hard to get anything done.

posted over 1 year ago
A MyParkinsonsTeam Member said:

Family doctors lack knowledge in PD and gluten sensitivity. I had to explain both to one doctor. I also figured out gluten sensitivity after reading Grain Brain. I used to nap every lunch hour and immediately after dinner on weekdays and sometimes 3 times on weekend days.

posted over 1 year ago
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