I work 5-15 minutes and rest 5-15 minutes. I also sit down to do tasks when ever I can. Sometimes I even get more energy as the day goes on. But I also have had days that I have become so weak that I found myself crawling up my front steps on all fours. So I have learned to keep a walking stick close by when I am outside. But I only use it when I absolutely have to. I also find that drinking a nutritional drink like Boost or a sports drink like Poweraide helps on a bad day. The important thing is to always try to move some. Even if it’s just a few minutes at a time. My physical therapist told me that Parkinson’s is trying to make us small. I try to keep doing my big movements in my physical therapy. Some days are better than others. But just don’t give up!!

Yes, I certainly have the exhaustion with PD especially in the afternoon and evenings. Mornings are best for me and I try to do everything I need to do in the mornings because after 2 p.m. I am not worth anything and might as well just go sit and read or watch tv. Even making dinner is a struggle. Cannot wait to eat and just sit down again. Just horrible having to deal with a couple of hours in the morning to actually do things. Guess I should be grateful I have a couple of good hours. Bean

It takes me twice as long to do the tasks I did "before" and I get tired out before I complete the activity. When I was growing up, I was taught to complete one task before moving on to another. Can't do that anymore. It is very frustrating. I've had to change my expectations/goals. Now I do part of an activity and then rest. Being retired, I have all day to do things so if it takes all day, it takes all day.

It is for me...it's hard to get anything done.

Family doctors lack knowledge in PD and gluten sensitivity. I had to explain both to one doctor. I also figured out gluten sensitivity after reading Grain Brain. I used to nap every lunch hour and immediately after dinner on weekdays and sometimes 3 times on weekend days.