She will sleep12 -14 hours at night easy. Most of the time she will not respond to you. Then all of a sudden she will open up her eyes. I have called the ambulance on her before because i couldn't get to respond what so ever. They came out and all her vital signs were good. By the time they got her on the stretcher she let out a little grunt..They took her own to the hospital… read more
@A MyParkinsonsTeam Member, what state are you in? Sleepiness is part of Parkinson's, but that doesn't mean she doesn't need a c-pap or bipap machine. I need one even when I was sleeping better than now. Universities with large hospitals attached usually have good neurologists, as well as sleep clinics. If you are in Michigan Spectrum Health in Grand Rapids have some very good movement disorder specialists, as does U of M hospital. Places like the 3 Mayo Clinics (Scotsdale, AZ, Florida, and Rochester, MN) will have them, John's Hopkins, Sloan-Kettering, and numerous others will have them. It's hard to answer not knowing where you are. You can Google for movement specialists closest to you, or even ask your doctor for a referral. Your primary can find one and make the referral if you're not comfortable asking the neurologist. I hope you can find someone who is concerned enough to do something. She will become weaker much faster if she doesn't get exercise, plus the disease will progress faster, too. I'll be praying you find someone.
Thanks. I will ask her heart Dr. Her neurologist said that was part of the Parkinson that she has. Do you know if there is a clinic anywhere that just deal with Parkinson. Thanks for your response.
I have times when I don't sleep more than an hour up to 4 hours, day after day, sometimes for weeks. Then suddenly I'll be unable to wake up for 10, 12, 15, even 18 hours, and then I start over again. It use to be much worse; I would sleep all night, get up and drink a 12 cup pot of coffee then fall asleep for 6 or 8 more hours. I can't say it's cured, but after a sleep study it was determined i needed a bipap machine. Many people need a c-pap machine, but because I don't start breathing right away I need a bipap machine.
If your wife has not had a sleep study, it seems to me that would be the place to start. If she stops breathing for brief periods during the night it interferes with getting enough quality sleep, leaving the person always exhausted and unable to stay awake, and the worse the problem, the more sleep they need to try to make up for what they've lost. And it isn't just a matter of sleep; my brother has sleep apnea and he has an enlarged heart, which has stabilized since he got his c-pap machine. It CAN lead to an early death, though not necessarily. A neurologist would be the one to ask about a sleep study being done.
I hope that helps.