Connect with others who understand.

sign up log in
Resources
About MyParkinsonsTeam

Connect with others who understand.

sign up log in
Resources
About MyParkinsonsTeam
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Husband Was Diagnosed With Parkinsons Dementia (PHDD) Does Any One Else Have This Diagnosis ?

My Husband Was Diagnosed With Parkinsons Dementia (PHDD) Does Any One Else Have This Diagnosis ?

posted September 28, 2019
A MyParkinsonsTeam Member

I was told their is strong possibility so i visiting Neuro every month going through the full motor and non-motor and now memory test barrage so he can map pace of progress. I do recognise my short term is memory is not as good as it was and my recall is very average these days. it sometimes takes hours to recall answers for simple questions. Also my spelling and grammar is average now so i totally dependent on spell check not just for bad fingers but also memory.

posted October 12, 2019
A MyParkinsonsTeam Member

I was diagnosed with Parkinson in 2020, but feel sure I had it 2019.
Last year I started noticing my short term memory was not good. Everyone that knows me says, “there is nothing wrong with your memory”, but they don’t know what I feel. I am 85, so how much of it is old age?
My new Movement Doctor who is also a neurologist will test me soon. I am very nervous about the outcome, but I do need to know if I am alright.
How long has your husband had issues related to dementia? Were the changes slow and suddenly get more noticeable?
I understand there is medication for both dementia and Alzheimer’s and it is best to start early, but I do not know how true that is.
I am so, so, sorry to hear of his news. I know it is very difficult for you as well. I appreciate you sharing this with us and keeping us aware. Once I am tested,I will share what I learn.😊

posted June 2 (edited)
A MyParkinsonsTeam Member

Yes, my husband too. Not easy.

posted December 13, 2021
A MyParkinsonsTeam Member

yes, short term memory loss, confusion, The Haze got it all but most of the time the hallucinations are an entertaining experience.

posted June 21, 2021
A MyParkinsonsTeam Member

I am terrified of getting dementia. I am not sure I could deal with it. I came very near a nervous breakdown after I found I had a brain tumor and prior to the surgery about a year and a half ago. I do know I have been losing some of my intellectual capacity & short term memory, but I am hoping it is simply age related and will level off.

posted August 21, 2020

Related content

View all
How Many Out There Have Parkinsonism? Do You Know The Difference Between Parkinsonism And Parkinson's?
A MyParkinsonsTeam Member asked a question 💭
My Husband Has Recently Been Diagnosed With Lewy Body Dementia
A MyParkinsonsTeam Member asked a question 💭
End Stage Of Parkinson Help
A MyParkinsonsTeam Member asked a question 💭
Already a Member? Log in