Connect with others who understand.

sign up log in
About MyParkinsonsTeam
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Any Recommendations For Reducing Dyskenesia. I Am Currently On Stalevo150 Three Times A Day.

Does Anyone Have Any Recommendations For Reducing Dyskenesia. I Am Currently On Stalevo150 Three Times A Day.

My dyskenesia consists of weaving of my right leg, feeling like my right knee is going to collapse, weaving of my body, a feeling of extreme tenseness in my body which lasts anywhere from 1/2 hour to 3 or 4 hours at a time.During this tensing time, I cannot enjoy anything that I am doing -it completely takes over my thoughts and actions! Some days are far worse than others - but it makes it difficult to… read more

A MyParkinsonsTeam Member said:

This is a video by Dr Sarah King. She is a PD Physiotherapist and very clued up. Hope it may help.

https://www.youtube.com/watch?v=wrQUMczzpOw

posted 6 months ago
A MyParkinsonsTeam Member said:

I have the some dyskinesia.. I have tightness in my chest. My arms and legs get stiff and I shake. If I am having a rough time I call a family member and they talk to me which helps me calm down. I also close my eyes and count backwards from 100 to 0. Some times I just have to wait it out. I will also walk around the house with my cane for five to ten minuets..I am having it right now but trying not to think about it and keep typing.

posted 6 months ago
A MyParkinsonsTeam Member said:

I had DBS (Deep Brain Stimulation) last June and it has, amazingly enough, completely eliminated the dyskinesia. You might want to ask your neurologist if you'd be a good candidate for it.

posted 3 months ago
A MyParkinsonsTeam Member said:

My wife has had parky for 16 years and dyskinesia for 3 or 4. she takes amantadine and another one to reduce it but has had to go in a home because she cannot transfer from bed to commode without using a hoist. We have no room for the hoist and i couldnt manage it on my own follwing a stroke. she now looks very frail and due to covid i cant visit other than through the home window which is most difficult.

posted 3 months ago
A MyParkinsonsTeam Member said:

Thanks so much for this. I have an appointment with my neurologist this afternoon and it gave me some more questions to ask! 👍

posted 6 months ago
Browse more questions and answers
Continue with Facebook
Sign up with your email
Already a Member? Log in