My dyskenesia consists of weaving of my right leg, feeling like my right knee is going to collapse, weaving of my body, a feeling of extreme tenseness in my body which lasts anywhere from 1/2 hour to 3 or 4 hours at a time.During this tensing time, I cannot enjoy anything that I am doing -it completely takes over my thoughts and actions! Some days are far worse than others - but it makes it difficult to… read more
This is a video by Dr Sarah King. She is a PD Physiotherapist and very clued up. Hope it may help.
I have the some dyskinesia.. I have tightness in my chest. My arms and legs get stiff and I shake. If I am having a rough time I call a family member and they talk to me which helps me calm down. I also close my eyes and count backwards from 100 to 0. Some times I just have to wait it out. I will also walk around the house with my cane for five to ten minuets..I am having it right now but trying not to think about it and keep typing.
I had DBS (Deep Brain Stimulation) last June and it has, amazingly enough, completely eliminated the dyskinesia. You might want to ask your neurologist if you'd be a good candidate for it.
My wife has had parky for 16 years and dyskinesia for 3 or 4. she takes amantadine and another one to reduce it but has had to go in a home because she cannot transfer from bed to commode without using a hoist. We have no room for the hoist and i couldnt manage it on my own follwing a stroke. she now looks very frail and due to covid i cant visit other than through the home window which is most difficult.