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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Any Recommendations For Reducing Dyskenesia. I Am Currently On Stalevo150 Three Times A Day.

A MyParkinsonsTeam Member asked a question đź’­
Oshawa, ON

My dyskenesia consists of weaving of my right leg, feeling like my right knee is going to collapse, weaving of my body, a feeling of extreme tenseness in my body which lasts anywhere from 1/2 hour to 3 or 4 hours at a time.During this tensing time, I cannot enjoy anything that I am doing -it completely takes over my thoughts and actions! Some days are far worse than others - but it makes it difficult to plan activities.

January 23, 2020
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A MyParkinsonsTeam Member

Thanks so much for this. I have an appointment with my neurologist this afternoon and it gave me some more questions to ask! 👍

January 27, 2020
A MyParkinsonsTeam Member

This is a video by Dr Sarah King. She is a PD Physiotherapist and very clued up. Hope it may help.

https://www.youtube.com/watch?v=wrQUMczzpOw

January 27, 2020
A MyParkinsonsTeam Member

I have the some dyskinesia.. I have tightness in my chest. My arms and legs get stiff and I shake. If I am having a rough time I call a family member and they talk to me which helps me calm down. I also close my eyes and count backwards from 100 to 0. Some times I just have to wait it out. I will also walk around the house with my cane for five to ten minuets..I am having it right now but trying not to think about it and keep typing.

January 26, 2020
A MyParkinsonsTeam Member

I had DBS (Deep Brain Stimulation) last June and it has, amazingly enough, completely eliminated the dyskinesia. You might want to ask your neurologist if you'd be a good candidate for it.

May 14, 2020
A MyParkinsonsTeam Member

Praying you’ll stop having so many problems with your dyskinesia .

January 23, 2020

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