I have the some dyskinesia.. I have tightness in my chest. My arms and legs get stiff and I shake. If I am having a rough time I call a family member and they talk to me which helps me calm down. I also close my eyes and count backwards from 100 to 0. Some times I just have to wait it out. I will also walk around the house with my cane for five to ten minuets..I am having it right now but trying not to think about it and keep typing.

I had DBS (Deep Brain Stimulation) last June and it has, amazingly enough, completely eliminated the dyskinesia. You might want to ask your neurologist if you'd be a good candidate for it.

My wife has had parky for 16 years and dyskinesia for 3 or 4. she takes amantadine and another one to reduce it but has had to go in a home because she cannot transfer from bed to commode without using a hoist. We have no room for the hoist and i couldnt manage it on my own follwing a stroke. she now looks very frail and due to covid i cant visit other than through the home window which is most difficult.

Thanks so much for this. I have an appointment with my neurologist this afternoon and it gave me some more questions to ask! 👍