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Newly Diagnosed

Newly Diagnosed

I have had a long journey and finally got diagnosed with PD. It was not the normal manifestation which I assume made it so long in coming. Anyone else get PD and have very little tremor early on and does it eventually surface while at rest? I get tremors but almost never when at rest. I do have slowness, stiffness, eyelid ptosis, tremor when I get hot working in the yard and it is all on my right side, issues sleeping like most. Most days I fall asleep on the couch and there is no way to fight… read more

A MyParkinsonsTeam Member said:

Exercise. ,water and good selective food.PD is your diagnosis. It your prognosis.

posted 6 months ago
A MyParkinsonsTeam Member said:

Hi @A MyParkinsonsTeam Member,
I was diagnosed more than 7 years ago at age 58. My symptoms were, and still are, similar to yours. Only tremor when stressed physically or mentally. Stiffness, REM sleep disorder, urinary issues, fatigue, some cognitive impairment....
What I do... Vigorous physical exercise as much as possible. Bike ride, ping pong, dance, swim, juggle, boxing. Do what you enjoy. Try to join a class with other PWP to form support community. Take a nap if you need to. Mine is almost every day 3-4PM. Talk to your Dr. (preferably a movement disorder specialist) about a sleep study and med adjustment for better sleep. I now take clomazipam (sp?) and sinemet er before sleep. It helps.
My Dr. says "exercise is medicine" and "walk more", you will still be able to do that far into the future. "put into the bank" now.
More advice for any newly diagnosed... read Davis Phinney Foundation "Every Victory Counts"
Stay healthy
Jud

posted 7 months ago
A MyParkinsonsTeam Member said:

I think sleep is inevitable as the years pass with this disease.

posted 7 months ago
A MyParkinsonsTeam Member said:

Try doing what RichardFynn suggested with your sleep the tremors are always going to be a come and go thing and the stiffness as well, just exercise as much as possible, keep moving try to stay mobile as much as possible. Sleep will come and go get it when you can. Take it one day at a time and you will do great and u have all of us.

posted 7 months ago
A MyParkinsonsTeam Member said:

Hey JP, whenever you feel the urge to sleep MUST MOTIVATE for a walk or jump rope or what have you. DO IT!

posted 7 months ago
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