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NUPLAZID
A MyParkinsonsTeam Member asked a question 💭

Does anyone on here take NUPLAZID, if so how do u like taking it

posted May 11, 2020
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A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member Are you having Hallucinations, illusions, or delusions? Have you discussed these symptoms with your neurologist? Go on to their website and review what they have to say. Write down your questions and go over them with your Doctor.
There is aid available for the cost.
Prior to Nuplazid............. the only psychotic drug therapy available to Parkies were drugs for schizophrenia. This is a drug for Parkies with psychotic episodes.
It is strongly recommended that if you are having psychotic events, that you immediately discuss them with your doctor. You can have these episodes with any or all of your five senses. It is also strongly recommended that you do not wait "until it is an emergency" Example: you see people, talk to them, invite them to stay for dinner. You set a place, cook extra. And you do this frequently. Your significant other or caregiver attempts to reason with you. You become argumentative. Your caregiver is extremely stressed over this behavior. The bottom line: your caregiver gets burned out, frustrated, cannot reason with you. You are convinced these people to exist you continue to argue. Your relationship begins to spiral, into the toilet. The only recourse for the sanity of your mate or caregiver is to put you into a care facility. [This may not be the best example, sorry]
Also the meds can take I think it is 4 to 6 weeks to become effective. Plus there may be a need to a need to adjust the dosage.
I hope this helps. I am not on the Nuplazid. I am only having illusions which my doctor is aware of.

posted May 11, 2020
A MyParkinsonsTeam Member

My husband was on this for a couple of years. In my opinion, and that of his Dr., they really have helped him at all. He still has hallucinations and paranoria. His Dr. has him on some other meds. They work for a little while and then he is back where he started.

posted May 13, 2020
A MyParkinsonsTeam Member

I started Nuplazid 12 weeks ago. Although my "visions" were never as vivid as the ones you have described above, this medication has eliminated them completely. The downside is a 30 day course costs $500.00 and my insurance will not cover a dime of it. Fortunately for me, my Neurologist found a charitable organization willing to pay for it for me. If you can get it, I would recommend giving it a try. Although its own literature warns that taking it could lead to worsening psychotic episodes as well as death.

posted May 12, 2020
A MyParkinsonsTeam Member

I have heard of it but have not tried it yet

posted May 11, 2020
A MyParkinsonsTeam Member

Thats what i was thinking

posted May 14, 2020
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