Is Focused Ultrasound Thalamotomy A Recommended Treatment? | MyParkinsonsTeam

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Is Focused Ultrasound Thalamotomy A Recommended Treatment?
A MyParkinsonsTeam Member asked a question đź’­

My wife is 68 years old and was diagnosed over 3 years ago. She is now in the middle stages of PD. Her tremors have been steadily increasing, and we've been unsuccessful with medication to control them. Her neurologist has recommended that we research Focused Ultrasound Thalamotomy, and her pain management doctor has recommended DBS, both of which seem daunting. What can be shared about the efficacy of focused ultrasound?

posted June 12, 2020
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A MyParkinsonsTeam Member

My dbs surgery was proformed in Central London and the symptoms targeted are tremor, pain, chronic distonia. I now have a very mild intermittent tremor, no pain whatsoever and no distonia attacks whatsoever since probes fitted. That was March 2017.

posted June 17, 2020
A MyParkinsonsTeam Member

DBS is reversible. I don't think that thalomotomy is. Something to consider, also. DBS also has worked very well for me.

posted June 12, 2020
A MyParkinsonsTeam Member

If it were me, I'd choose DBS. I posted an article last night, and I can find it again after work. Google DBS vs FUS, and you'll get a ton of results. May not all be easy reads, but good info.

The issue with FUS is that it's a one-and-done procedure, and can't be adjusted to the patient's needs over time. It's also only done on one side. If there are side effects, like speech issues, or gait issues, they can't be reversed. Also, I'm not sure if it's been approved for coverage under insurance for Parkinson's yet, just essential tremor. I may be wrong on that.

I know a few folks who have had DBS in the past few years, and they're steady as a rock. Be sure you're in a superb program with an experienced surgeon performing the procedure.

Do the research, and holler off you have questions. I'm seriously looking at DBS as well.

posted June 12, 2020
A MyParkinsonsTeam Member

The. Ultrasound I know nothing about but I have had dbs which is brilliant I was 3years diagnosed when preformed about same stage as you wife and meds were becoming less and less effective. I recommend you research dbs further.

posted June 12, 2020
A MyParkinsonsTeam Member

Will do

posted July 11, 2020

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