Thanks for the Facebook lead! (I have joined a group!) Am glad you elaborated about your research. I can relax now!
I too am frustrated with how this site works but until I can offer a good idea of how to fix it ... I will wait to weigh in. Do you know or suspect where it is going wrong? At the very bottom of the page there is a contact us email.
Lastly but not least..I take Dopa Mucuna, and Restore Gold (see SEARCH engine icon at the top of page---KathieAnn Restore Gold)
I am considering making a gradual switchover from C/L ER to Mucuna Prurient.
We'll see.

Does your husband want to stay at home or is he itching to go to rehab? Tell him I've been to rehab He won't like it! For one his meds will never be on time and he will get attention when they feel like it!,
Compare THAT to home and your tender loving and tell him to get his act together and do his breathing! And give you a hug while he's at it.

Take care of you!
KathieAnn

I moved to Rytary about a year ago and am pleased. it seems easy to handle and I cannot identify any side effects or new symptoms as a result of it. I had been on straight Sinemet, and Stalevo, and several other drugs over the years and Rytary is what I like the most to ate. I also take a supplement of Inbrija(inhalant) as needed during OFF times.

The move to Rytary appears to have been good for me. The biggest symptom I can notice is I am thirsty alot and need to stay hydrated, or I get light headed. When working in the yard, Gatorade is a excellent drink to have on hand.

4 capsules 3 times a day 8am 11 pm and 6pm,
Mornings are most difficult since it doesn’t seem to kick I night away. But no more nausea or wearing off after an hour and a half as with c/l.
🌈TheaD

>kathieAnne
I have spent countless hours researching alternate treatments- I have found most articles come from Switzerland, Israel and Australia - but in the end no real progress - husband is on his 3rd week of Rytary- don't see a noticeable difference but he seems to have less off time - his new problem is swallowing so I purchased a $50 breathing exercise machine which is supposed to strengthen his esophagus- getting him to use it several times a day is a challenge- supposed to be a 5 week workout - rather than the alternative of manually opening it under anesthesia- good luck to you - we don't have a big support group as kids do not seem concerned - but they do not live with it - good luck - I find this website frustrating as I can't navigate it - several groups on facebook

It's my husband - he is on 3 - 2 and 2 - doing OK with it - took a while to adjust- set up exercise videos for pd - you proceed at your level - and he walks 3 miles 2x a week - exercise and movement the key to helping fight this disease