My husband gets up at about 8am. He has breakfast, takes his meds and lies back down at about 9. He sleeps until about 11. He gets up does a few things and has lunch at noon, takes meds and lies back down at 2. He sleeps until 3 or 4. Gets up does a few things eats dinner, watches TV until 9 takes meds and goes to bed. I feel like I am working harder at fighting this disease then he is. I try to get him to walk more and he does go to Rock Steady boxing twice a week. Just wondering if my… read more
My husband also sleeps a lot in the day, and not at night. He does not want to walk and is also depressed.
How long has your husband been dealing with Parkinson's I have days like that myself it's hard to make myself do anything. I know it frustrates my wife I've had mine since 2011. I'm 61 years old and they tell me my problem is that I'm depressed and I think there's some reason to believe that as well.
So my psychiatrist has me on pristiq and Sunosi and the sunosi gives me energy which really seems to help but it's very expensive. It's possible something like this might help him as well, I hate taking pills I take enough pills as it is but I didn't have any energy I didn't feel like doing anything but sitting in a chair and just zombie out. I also do a Parkinson's exercise class twice a week. Please be patient with him trust me this disease sucks!
Movement always helps. I have been a part of Rock Steady boxing for over 2 years & I believe I wouldn’t even be able to get around if it wasn’t for my 🥊 boxing. Actually we first do warm ups then some good stretches & some stuff that is pretty hard. Then we box awhile then do cool downs so if someone thinks we just box there is more to it. The really great thing is because of the Covid we couldn’t meet together so we went to Zoom. Now we use Zoom 4 days a week for about an hour to 1 to 1 1/2 hrs. But you need to remember Parkinson’s is progressive so RSB doesn’t cure you & give all your flexibility back. But it can push off the wheelchair for a good amount of time. Check with them in case they can put together a Zoom class if they don’t already have one. Good luck! I can never write a short note…sorry
When you said Rock Steady Boxing, that started this conversation. I checked into it two weeks ago. The leader followed up with me, how ever i did not get a positive response by my husband to take me there. It's nearly 30 miles away.. Has it been helping him? Yes, I read from so many others that sleeping is a big problem for so many. I could sleep 12-14 hr a day, and always want more. If he is taking Sinemet that could be causing the sleepiness.
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