I discovered research that smell reduces in nearly 85% of people before diagnosis. Yet that isn't used or tested for. Smell can be reduced for other reasons. But my smell seems normal. It's unclear yet if I have PD or maybe vacscular PD or maybe something else (I've had drugs for lymphoma). Is the lack of reduced smell a good sign that maybe I don't have regular PD?
That's why I want to do the official test. I hadn't noticed any reduction in smell. I can pass the covid smell test (pop an jelly bean while holding your nose. Let go and see if you can tell what it tastes like.) But it'd be very interesting to see the official results that are more fine tuned.
My husband has PD but hasn't lost his sense of smell. I think like a lot of PD symptoms, some get it, some don't. Loss of the ability to smell can also be a sign of Covid and Alzheimers, so it isn't really that helpful for diagnosis, either way.
Yes, and my diagnosis for over a year has been Parkinsonism.
So your smell is still in tact. Good luck getting this nailed down. Thanks for the info :).
I still have a sense of smell and no diagnosis. It’s been over a year now. I started with a hand tremor, problems with balance and gait, and in the last few months other symptoms have popped up. Having some tests to determine whether or not the cause of these is neurological. I’m seeing the neurologist in about 2 weeks. He’ll have all test results and hopefully a diagnosis.
He already told me that treatment for whichever neurodegenerative disease I have would be similar to that of pd. I’m comfortable enough most of the time. I guess I just want to put a label on it.
We never share your personal information with anyone.