Was Just Told She Has Parkinsons I Went From Walking With A Walker To Not Being Able To Walk At All Has Anyone Else Had This Happen To Them | MyParkinsonsT

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Was Just Told She Has Parkinsons I Went From Walking With A Walker To Not Being Able To Walk At All Has Anyone Else Had This Happen To Them
A MyParkinsonsTeam Member asked a question πŸ’­
posted February 6, 2022
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A MyParkinsonsTeam Member

Hello.-my wife was diagnosed with PD in early 2020. Began taking Cardi-Dopa/Levadopa and did very well until Spring 2020. She had been taking the meds on a schedule (8 am, 12 pm, etc.). I researched and found that the meds run out and give "down times",, depending on activity, food intake, etc. Think of the brain as a reservoir that needs the dopamine to function. Keep it at least partially full during waking hours. Bottomline, she now takes her first med immediately after getting up in the mornings, and then "as needed"--i.e., at the first little sign of a symptom (weak legs for her)--and so on through the day. This has made an amazing difference in her life (and mine). Some days she may take 4 pills, some days 5. No problem. We explained this to our doctor who diagnosed her with PD, and he said "great." I hope this will help--discuss with the doctor. Good luck & God bless you!

posted February 10, 2022
A MyParkinsonsTeam Member

I went from walking to a cane, to a walker, to a wheelchair and then a power chair all in 6 years of being diagnosed with it at age 38. I'm 58 now.So 14 years in a wheelchair!!!πŸ˜‡

posted November 27, 2022
A MyParkinsonsTeam Member

My husband is 82yrs and hasn't driven in 2yrs. He has had P.D. since his early 70's. He went from walking, then using a cane, and now a walker in the last 2 yrs. Two hospitalizations precipitated these downward spirals. Each time he got sick it took months to get back to his new normal plus his age is a factor. Keeping a P.D. pt well helps, but covid and surgery mean setbacks, everyone is different.

posted January 19, 2023
A MyParkinsonsTeam Member

Better 283 Thank you for the πŸ«‚ hug and here's a hug πŸ«‚ for you.
Take care of yourself and be blessed πŸ’ž Julie Olson 2 and Merry Christmas β›„πŸŽ„ to you.

posted December 21, 2022
A MyParkinsonsTeam Member

thank you

posted May 12, 2022

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