I was diagnosed 4 years ago just before my 75th birthday. I was visiting with my daughter, when I noticed my legs wanted to dance a jig when I wasn't in the mood for dancing. When I came home I saw a neurologist, I was sent to a specialist and he diagnosed Parkinson's. When I read up on some of the symptoms I realized I may have had Parkinson's since I was in my twenties. I lost my sense of smell and taste not entirely but enough that there was a difference, I lost my voice (off and on), and I've had that annoying white noise in my ears, seems like forever. I saw different doctors over the years regarding my various symptoms, but it wasn't until I was diagnosed that I realized that all those symptoms I had were Parkinson's.

@A MyParkinsonsTeam Member, I’m curious as to whether you are still working, because if not I have a great proposal for something to do with your acquired knowledge: you could go in and teach medical personnel, especially nurses, about the need for pd meds to be given ON TIME!!! And. Why! In the hospital nurses tell me they have from an hour before to an hour after a prescribed time to administer meds. Little attention is given to the need of the patient. Now not all nurses are like that, but my experience tells me many nurses are undereducated about in these needs, and have no idea what’s happening with the patients. And you would be perfect!
Hugs we succeed

Mentioned Users

A MyParki...

Sadly, TeresaBaker1 I'm no longer working. But, I do have a fix for that issue. Hospitals are not set up for nurses to administer medications in the narrow window of time necessary for PD patients to keep their symptoms in check. When I was recently admitted to the hospital for my DBS placement, I brought my meds with me. (You must advocate for yourself and communicate with the hospital staff.) I told the staff that I have a rigid time-span for my dosing and they brought my medication bottles to the pharmacist to verify the prescriptions and returned them to me to take on my own. Everyone was happy.

Thank you for your reply Kenneth. I recently discovered that one part of one of my asthma medications is a neuro-excitant and was causing me to have the symptoms of Parkinson's. I will be seeking a medication change soon.

Bobbie, at your age I think you should do whatever makes you comfortable. I used used to think 86 was very elderly but doctors have started referring to me as a “pleasant elderly woman” and I won’t be 70 until May. Suddenly 86 doesn’t seem very aged at all. I doubt I’ll make it that far, but if I do, I’m going to tell the doctor what to do. Tremors are hard on the body but if you can tolerate it, it should be up to you. For myself I can’t take levodopa unless I want to throw up for 3 hours. My meds do a good job. I hope you get what you need, without the cold and anxiety. Happy St. Valentine Day! ❤️
Teresa (pleasant and elderly 😊)