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How To Help PD Spouse Without Squashing His Feelings
A MyParkinsonsTeam Member asked a question 💭

Do any of you have any hints for Caregiver with regard to easing panic/anxiety, but doing it in such a way so as to honor the PD spouse's feelings but hopefully help PD spouse reign in agitation?

posted May 19, 2022
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A MyParkinsonsTeam Member

Having read all the above in response I saw some very interesting suggestions. If I understood the question, it was about how to handle a PD husband with his symptoms without crushing his ego or self esteem. One thing we have to take into consideration (whether however we may see it) is that men by their very nature feel like they should be able to handle anything that comes along. That feeling of masculinity when something like PD comes along and begins to erode his abilities is a very major downer for most men. Their self confidence and sense of pride is injured and they feel less of a man.and become resentful in many cases about the fact their wife care giver is now making decisions and taking responsibility for things he has been doing. She is issuing orders and and controlling his life, and his manhood is being taken from him is how many feel and he doesn't understand what's happening.
I believe every care giver and PD patient needs a list of potential symptoms and how they affect the body physically and mentally. There's a lot of information on the internet, but I think my book "Serving A Life Sentence" could be helpful in a lot of cases. I wrote it in an effort to try to help others with PD.

my love & prayers in Christ, Robert

posted May 20, 2022
A MyParkinsonsTeam Member

Hi My Friend,
In my way of thinking, communication skills between the Caretaker and the PD Person is really important. We know that our thoughts create our feelings. And a lot of times we feel anxiety even leading to panic and we don’t know what we are feeling or why. We are just in our feelings and they are strong and the anxiety increases but we just have no idea why. We have no clue what the thoughts were or even think “what were my thoughts before I started to feel agitated or anxious or fearful, etc.People just don’t sit and say what were my thoughts just now. We just FEEL!!! There are techniques that a person can learn how to listen differently and enable the person to hear what he is saying and feeling. If you are interested we can talk about it in more depth. There is another way for you for yourself can get to what’s going on inside of you. I can scan an example of what we called an RSA that helps you what’s going on in you and why. It’s late and I’m exhausted so for now I will just say that when I was at the Center a team from Ohio came and taught some of us leaders some courses. One was Apples 1 which had to do with listening skills. Apples 2 was using those listening skills to draw out from the person the answer he already had inside himself but couldn’t see and wasn’t in touch with. Not your perception but using his own words to uncover the possible feelings. Trust me this is a hatchet job of explaining it to you. The 3rd one was RCT which is Rational Christian Thinking. We were a Catholic Center so it was Christian Thinking. But it could have been called Rational Person’s Thinking. That’s where you used the RSA. Explanations later. They were classes that were taught, we had workbooks, and they showed us an example of how its done. They called person the Helper and the other the Seeker. And you saw what you were learning being performed so to speak in front of you. Then you took one of their roles and learned by doing and then switched roles. When we had completed the courses they came and helped us teach them until we were ready to teach them on our own. A Psychiatrist unknown to me at the time took the Rational Christian Thinking in the group I was facilitating and when the class was finished people shared their experience. He stood up and said he was a Psychiatrist at Oschner Hospital and if more people took these courses fewer people would have to come see him. I almost fell out of my chair, because I had drawn out something he was feeling he was unaware about concerning a particular happening at his bank. I never would have done that if I knew who he was, but I was right oh target. I have to go to bed. If none of this is applicable to your situation thats fine I just thought it might help. So don’t worry about it. Love and Blessings,
Carol

posted May 19, 2022
A MyParkinsonsTeam Member

You might remind him that you know he’s quite capable of many things and encourage him to teach you something. I struggle with frustration because I feel helpless; my caregiver reminds me I know what I like, so let’s do it. The next thing I know I’m involved in something and don’t realize why.
Hugs 🤗
Teresa

posted May 20, 2022
A MyParkinsonsTeam Member

I am direct with my PD husband. He still is very sharp. He is still a mature adult. I handle him as I would anyone, with genuine respect, truth about the path we may be heading, and requesting their feedback. He is not always happy with my thoughts, but I feel that it is fair.

posted May 19, 2022
A MyParkinsonsTeam Member

Hi Robert, I ran into these issues with my husband who died of Alzheimer’s. I dealt with it by asking him to do something I could have done myself, but knew he could do it. He felt good being able to help. Of course the difference comes later on when he could no longer understand, but early in the disease I would ask him to do dishes, help me make the bed or vacuum. I let him make his own breakfast which was toast, and fix his coffee. Each day I simply assessed how he was doing and gave him tasks as he was able. Our grandchildren would take him for walks by allowing him to think it was he taking them for a walk. This way he was helping me get my work done.
Thanks for the suggestions.
Teresa

posted May 20, 2022

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