I am now in my 9th year of PD and am considering this surgery. I would love to hear of others' experiences with DBS surgery.
My doctors name is Brandon R Barton. They've been wonderful going back-and-forth with me. I am I'm feeling so happy that I joined this because everyone that has it like Michael J Fox, who is very positive and he's out there raising money to study this disease. Any feedback
I had DBS Oct. 2020. It was very successful for me. I work with a movement disorder doctor who does adjustments quarterly, unless I need it more or less frequently. It has been wonderful for me.
I had DBS surgery on October 25th, 2022. It is still early, as my pulse generator was just activated on December 13th, I am seeing improvements in my movements and some reduction of my tremor. My device (only on left side of my brain) is set very low at 1.5, so still adjusting.
I was diagnosed in the Fall of 2021 and am in early Phase 1 of PD. I am part of a Gait Study at UCSF that will include a trial of Adaptive DBS in 4-6 months—once enough my brain data is collected. The thinking of when to do DBS is changing, to do the surgery earlier in PD vs. later, to improve quality of life longer.