Do any of you feel like you are spending too much time dwelling on all things PD? I was diagnosed 5/3/22 with PD and was determined to find out all there was on PD information out there.
I’m now wanting to push back and not spend too much time engaged in PD things. What about you all?
Hello Dave9,
I thing we all go through various phases in our journey with Parkinson's disease.
I was diagnosed in 2015 and I went through a phase which involved learning as much as possible about Parkinson's. Mainly because I knew almost nothing about it Parkinson’s.
I also felt I needed to figure out what was down the road as the disease progressed through each stage so I could at least be somewhat prepared for battle.
At eight years in, I'm slowly progressing through the third stage. I'm always aware of my Parkinson's, but at this point, it's not the boss.
I realize that this false sense of superiority that I'm currently feeling will eventually disappear, that is if I live long enough.
This disease is progressive, it currently has no cure, no medication to even slow the progression. Every single medication we take is to mask or hide a symptom.
The best advice I can offer is keep educated and aware of the disease, take your medication so your quality of life is as good as possible, eat right and exercise beyond your desire so you can keep your body moving.
While it may not feel like it at times, we're in a battle with a relentless foe.
Good luck,
I don't let pd rule my life I know it's there but I'm a fighter
Yes yes yes! Sometimes it demands more attention and when it does not well…I forget about it! That’s healthy! Be sensible and take care of yourself of course but there is a lot more to me as a person and a lot more wonderful things going on in my life than Parkinson’s!
That’s the path I am taking.
I am my husband's caregiver. I read everything I could when he was first diagnosis which I think is a good thing. Educate yourself on it, keep current information on it for the times you have questions but try not to let it become your only focus.