Hi Dave,
Learning to communicate with your Neurologist is difficult. It took me several years and a couple Neurologist before I realized that I needed to track symptoms in writing and take it with me to my appointments.
If you don't, your doctor's will only treat you based on what they see when your sitting in front of them or by how you answer their questions.
At that point, they're looking at a snapshot of a medicated patient.
I have an app that tells me when to take my medications and another that tracks symptoms, but I also have a notepad and pencil laying by my bed.
I write down the date, time and derails of anything unexpected such as a new symptom, I track my on/ off cycles, etc.. I write down any questions, concerns, and thoughts in between appointments so I don't have to remember what to ask on the fly.
I hand it to my Neurologist, he looks over the notes and then ask questions, expresses concerns, adjust medication, etc... based off his examination of me and the information he has in front of him.
It's not like I write a book, especially since my ability to physically write has diminished to what I call some type of primitive chicken scratch.
At times it's a just a few questions, sometimes it's a page or so of scribble.
My wife also picks it up and writes questions or things she's noticed in that same notebook.
For me, it's much easier than trying to remember stuff that happened over the last couple of months and ask relevant questions during an appointment.
Best wishes,
Ken

Question you say neurologigts say-you need more dopamine well how do you get this?

My doc ordered an MRI of my brain after my 2nd visit to confirm my symptoms as PD. After that, it was all about my needing more and more dopamine via C/L. He is very insistent about exercisewhich i never did and likely never will. But i meditate and create paintings on my IPad, sleep well can smell and taste have no constipation issues due to taking supplements for that.

He dismisses articles i read for treating symptoms and says i need more dopamine and exercise.!! He says he knows more than i do... then we laugh!

I hear you, just wish they would come up with more definitive testing. One would think with all the research and time we would be getting better help. It's almost "patient heal thyself".

Hi Ken, thanks for your suggestions. When I was first being evaluated I was amazed by how detailed he was. Others, had a very few questions, had me copy a picture, and gave me a very dated medication. You had very useful information. JudyTx