Has Anyone Out There Dealt With The Cognitive Side Of PD? | MyParkinsonsTeam

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Has Anyone Out There Dealt With The Cognitive Side Of PD?
A MyParkinsonsTeam Member asked a question 💭

When my husband is overly tired, or stressed, he starts screaming at me over the littlest of things. He is very paranoid, and unreasonable. I have found articles explaining that this is part of the decline of the brain, but I haven't found answers as to how the caregiver is to respond in these situations. It has brought me close to filing for divorce. I don't want to abandon my husband when he needs me the most. How do some of you handle this situation?

posted August 20, 2023
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A MyParkinsonsTeam Member

Thank you for sharing your experience with me. I am glad you realize the situation. My husband, however, won't accept that it is the PD which is causing the outbursts. He blames everything on me. I try to stay as calm as possible so that I don't agitate him even more. But it does become a type of verbal abuse. I don't know how much more I can handle. He refuses to talk to his Doctor's about it. I just keep praying for both of us each night. This September we will have been married 41 years. I don't want to throw in the towel just yet.

posted August 21, 2023
A MyParkinsonsTeam Member

Yes. In fact, Eddie, my husband with Parkinson’s, has had a lot of cognitive issues with PD. He was having a lot of negative outbursts and delusions before we found his Movement Disorder Specialist who along with his psychiatrist and counselor helped a lot. He now takes Sertraline and was taking Donepezil which helped a lot. He just got switched from Donepezil to Exelon because it’s supposed to help with his R.E.M. sleep disorder. Anyway, finding a great psychiatrist and a counsel for Eddie helped a lot as well as discussing the cognitive issues with his MDS. Seeing my own therapist who has a lot of experience with PD patients has helped me. I wish you and your husband all of the best.

posted August 20, 2023
A MyParkinsonsTeam Member

This is part of the disease of aside effect of the medication.

https://www.myparkinsonsteam.com/resources/deal...

posted August 21, 2023
A MyParkinsonsTeam Member

My executive decision making has suffered since my diagnosis of Parkinson's disease.
However, I'm also 72 years old, so is it the Parkinson's the age, or a combination of the two?
Some seem to have a tendency of blaming Parkinson's for anything and everything. Keep in mind that the majority of Parkinson’s patient's are also senior citizens and as such also get senior citizen health issues. Cognitive decline happens with or without Parkinson's.
As far as the anger issues go, I've experienced sudden, unreasonable, unpredictable, uncontrollable, unwarranted outburst over everything, anything, and absolutely nothing all at the same time. This is a real symptom of Parkinson's and I personally believe it's related to the lack of dopamine or a chemical reaction related to a lack of dopamine.
Getting my Sinemet dosage raised and dialed in has tamed my beast. I have noticed a direct relationship to keeping my dosage times. If I miss a dose, I will feel more agitated, miss two and horns start growing out of my head, a bifurcated tail sprouts and I start searching for my pitchfork!
Keep my brain supplied with dopamine and you gotta work hard to make me mad. At that point, it's a justified and reasonable anger. Not enough dopamine and I'm no longer capable of coping - with anything.
Just a thought, but maybe your husband needs his dosage increased because he isn't getting enough dopamine to his brain?

posted August 21, 2023
A MyParkinsonsTeam Member

Can you just walk away until he calms down and you calm down? I am sure that staying calm and not reacting is key, but I am sure it isn't easy. (My husband hasn't done this, so I don't have personal experience.)

Have you spoken to his doctor about this?

posted August 20, 2023

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