What I didn't expect is the fatigue. Also the balance issue. I do the best I can under the circumstances. But for example, I decorated my house for Christmas yesterday. And I had to stop at 2 o'clock in the afternoon because of the exhaustion. And today I'm wiped out. Does anyone else get exhausted?

Acceptance is so hard with a progressive disease. This disease affects our spouses and our relationships with friends, coworkers and family members. We have our "moments' and so do they. We need to accept every day that we can't change the diagnosis but encourage and appreciate every positive effort made to care for us every day. It is hard for those we know and love to see how we change. It is painful for them. They wish they could wave a wand and PD would be gone and we could be free and live our lives as before looking forward. But all of us should live. every day like it is our last. None of us who are healthy or suffering with health issues knows how long we will be here.

We can get snippy and/or balk at the full time job to fight this disease but those of us who have people prodding and cheering us on are such a blessing as are all of you walking this road beside us.

It is okay to be mad...but better to be glad for our partners walking beside us who understand.

..

Not being able to walk very far anymore but I have a wonderful husband Ed and a wheelchair full time
And a hot pink and black motorized wheelchair that I just love 💖 and it has 5 speeds and a seat belt I use it to
She goes 35 miles a hour 😃. Zoom Zoom Zoom and has a Horn 📯 on her too 💖💖💖. What's not to love
About that 🙏... Julie Olson 359.💖.

I think the whole thing thru me off. I lost my independence. No driving. I changed meds and it thru me off for about a year and I almost lost my husband. (My mind went on vacation). I have always been very independent and have worked hard to keep it. My brain got fuzzy during the off times and my leg was shaking. I had to retire earlier than I wanted to.

@David37
I am thankful for Parkinson's because it has motivated me to be prepared. Unless the rapture happens quickly, none of us are going to get very far away from this planet alive. Most of us think we have plenty of time. Parkinson's reminds me that I don't have forever.