I Suffer From Severe Wear Offs Every 2 Hours. | MyParkinsonsTeam

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I Suffer From Severe Wear Offs Every 2 Hours.
A MyParkinsonsTeam Member asked a question 💭

Does anyone here go through this? Im at my wits end and so is my wife. Feels like i am going to die everytime.
Im at the point where I cant breathe, cant move, in pain and extremely nervous. This lasts until the next dose kicks in whenever it decides to that is.

posted October 8, 2023
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A MyParkinsonsTeam Member

Anthony, like you ,I'm sick and tired of taking pills. Take one to fix this problem and and hope it doesn't create another. Wishful thinking!! Oh, least I forget,fitting into your timing schedule!! But anyway, I've just started Retary. It seems to work ok.

posted December 4, 2023
A MyParkinsonsTeam Member

thanks, yes I did but the thing is i dont want to take anymore drugs. More drugs, more problems...for me anyway.

posted October 8, 2023
A MyParkinsonsTeam Member

Have you spoken to your neurologist? There are drugs that can extend the effectiveness of c/l to lessen the off periods or you could switch to an extended release version of carbidopa. A duopa pump might also be an option.

posted October 8, 2023
A MyParkinsonsTeam Member

I take ER C/L, but then take a regular C/L in between doses and I chew that one so that it gets into my system faster, since the dissolvable one is no longer available. It starts working within 10 minutes when I chew it, although you feel like you have a mouthful of chalk, but there is no taste, thank goodness! I take the ER tablet 3 times a day and the regular tablet twice a day, in between the ER doses as needed.

posted March 30
A MyParkinsonsTeam Member

Only thing I take at the moment. I take 3 pills 3x per day..8, 2, 8

posted December 4, 2023

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